Dysfunctional Families Online Support Group

hi my frinds, well, itll be short today.. letting u in that as of today i was actively listed for a double transplant. i hve to go see the dentist and eye dr and get an abg. my paper work is already at my insurance comp. so things are moving along and yeaa iam scared but its normal. so iam down for a double but i might only get a single, thats ok too. I dont mind sharing life with someone eles,one is better then none.well trying to absorb it all, get things in order, and deal with ok im dying but iam still so healthy.

how many people can say that one hahahah

well, ok ill try to be here later on tonight, just took me some preds so ill be on a roll now lmao.. have a great day and easy breathing my friends, ohh let me tell u, after tx iam no longer allowed to take the sun. no beach till after 4 pm and use sun block 24 hrs a day 7 days a week, inless im in the house, the rejection meds cause skin cancer which will be invasive.. so thats ok tho, ill be alive and breathing))

SmokeyJo Wow I'm surprised how long of a process this is. God Bless you for hanging in there. I'll be praying for you

Joanne..I'm so happy and excited for you..I know this will go just fine , I seen a man once with one lung he said they gave him 25 years before..and you would have never known it, until he grabbed the smoking gun out of my hand and said here..Do you want to breath, I have only one lung..you got two and your going to kill them both. Why dont you just donate them now while your young and healthy..they will catch up with you. At first , I was mad, but noticed this man cared, he looked at me with tears in his eyes..I said are you okay? He said I am , but you wont be if you don't stop them soon...so true.

God sends many people i feel are angels to us to warn us of harm we are doing to ourselves..I'm proud of you Joanne ...I have to quit now, my doc said so!

Joanne, I'm sorry it took me so long to post, due to computer problems. I just had to reply to your post as soon as I read it. That is awesome news! I'm so glad to hear you'll have the transplant. Prayers going for you. GBHugs, Donna

Joanne, that is wonderful news and I'm so happy for you! Do you have any idea when you'll have the transplant or is it something that happens at the spur of a moment?

Joanne..keep us informed on how your doing , we care so much about you...Get well and breathe again...Luv and peace to you

Just got this from SMOKIEJO (joanne) one of the co-leaders here...you can go to her site anytime at here........

www.caringbridge.org/visit/joanneiuliucci

Heres Her message to all of her friends

The twins are almost here..

Written 51 minutes ago

I was told today that the twins are close, it shouldnt be a long wait ( double lungs) LMAO My coordinator called today, she ran threw the dos and donts & there was very little dos.I have to go there friday for a arterial blood gas , its important for unos. so its looking good,and very scary, if i get one lung ill be in suregery 6 hrs,twins itll be 8-10 hrs. it depends on me & them My daughter and neice will be here to write my updates, nicole and danielle.lets see,life changes, no grapfruit for ever, i dont care i hate g/f juice, no fruits for 6 months mayb a yr, no red meat,no buffets, no sun bathing always use sun screen, can swim in the ocean but no river or lake, no plants or flowers allowed,the soil makes bacteria fungus, no more alcohol thats ok, stay far away from smoke fires bon fires bbq smoke. they can tell if ur smoking or if its from 2nd hand smoke, or envirormental,) so dont think u can fool them drs, you cant) They said when I leave i will leave with 2 huge shopping bags fill of a months supply of meds, 20-25 pills aday.theres alot of work to this tranxplant work, Ill have 2-4 chest tubes, be sedated,on a vent. most liklly a few days ,now i have to get things in order, keep our phones on 24/7 & just sit tight & weight my daughter graduated, or got pinned for her lpn, she done us proud, shes home and doing well. time to go dream good dreams.cant keep the eyes open,will update soon, and thanx to every single one of you guys for walking this journey side by side with me,couldnt do it without u guys..xoxoxo

Then you can sign her guest list and look at her pictures and even leave comments, its pretty neat, check it out...

Post edited by: Peace77, at: 05/22/2012 10:21 PM

ohh thanx patty now i dont hve to rewrite it haha

tomm yep going to bye a pkage of underwear,pjs comb tooth brush ) I have a house full of neices nephews & kids since i got listed lmao .. i cant wait for fri-sat 85 degrees. think ill go sit on the beach b4 i cant do that anymore and get my last summer beach tan going on here lmao hope everyone is doing good out there.. patty ur the best. thanks for following me and posting it here saves me time .luv u hope ur doing good patty ) hink of uall the time miss ya 2 xoxox luv ya jo,

angela.. any time now, all im waiting for is a match and a call then ill be on my way, i have a strong feeling the way they talked its going to be like july / aug i hope b/c my daughter is home till end of aug & i reli need her with me lmao sounds crazy but shes my rock,jimmy to but a daughter is a daughter )

Jo, I'll be keeping you in my thoughts and prayers!