Dialysis

Well, I have a interesting question and wanted to get an opinion either way on what other's thought? I am not complaining because I know there is long wait and the process can seem forever, but well, I am actually more curious now, and just wanted a clearer understanding.

I have been on dialysis for almost five years now. My Primary Care Physician and I were talking the other day and she says, "You know, I think we are going to switch Nephologist because you have been on a dialysis for five years now and are supposedly registered with two hospitals for an upcooming kidney transplant, my question to you is have you received any phone calls or anything?" I don't know much about how one gets a kidney transplant, I have no family members who match me blood wise, and there just isn't any other option except to wait for a transplant. This was a hard decision for me, but I had an active life before dialysis and I am still under 50 and believe that I still have a good many years left.

I haven't been able to get any information about where I am on a transplant list anywhere. The Social Workers are really bozo's and don't provide much but they sure talk alot like they are providing you a lot of invaluable information. I don;t know any more than what I have been able to gather online, through forums such as this.

2. Have you been able to find out where you are on the list, and when I said, no to that question, she left the room for a while, came back and said, We are going to get you in to see Dr. Ruggles who is a new nephologist in the area. So in August, I see Dr. Ruggles. I'm excited because I really need information now. I feel like I've been pacified with whatever they think I want to hear and that just isn't cool anymore.

Okay, I said, not a problem. My Nephologist graduated from Med School five years ago and left the hospital and started his own practice. He has moved three times in a year, each time to larger offices. You can't see him at his office, and his staff doesn't really communicate to the patients well. Its annoying sometimes. I see him once a month for about 20 minutes.

There is no more real communication because each time I see him I see him with four other people all in the same room. Two nurses and a Dietitian. As I've already noted, they all say a bunch of ridicules stuff but it really has nothing to do with me. Personally, I am overjoyed to be seeing a new doctor. This one has exhausted his real medical ability and is more concerned about the money and getting me back to work? Yes, really.

I am registered with U.C. Davis Medical Center in Sacrament, CA. and California Pacific Medical Center, In San Francisco.

I am positive, proactive, hopeful and through all of this have rekindled an awesome relationship with the Lord to get through these tough times. I am now on home dialysis, and hope to do this until I receive the call fro a transplant.

So what do you guys think? Am I over reacting or can you see where I'm going with this?

Thank you in advance?