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08/24/2013 04:20 PM

diatomaceous earth

LinBC
LinBC  
Posts: 2013
Group Leader
I'm an Advocate

I would like opinions and suggestions on diatomaceous earth. What I've seen online tells me it's worth looking into, but I'd like to hear what your experiences with it are.
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08/25/2013 11:20 AM
lken
lken  
Posts: 2827
VIP Member

well i only found out about about it 3 months ago, got it from a old veteran at the VA, there is a chat group who talk about it, there are so many uses. as long as man does not process it, it is used as a swimming pool filter and drying agent , it is bad that way for food, then the natural bug killer sold at home depot, it was really was my 1st use, but i did not know what it was then, sure kept ants away.

when i read about it when i found it controls sugar levels and bp, and cholesterol,

http://www.earthworkshealth.com/human-use.php

i found it drys u out, it is great diuretic, no taste and like flour. except crap they sell in texas at feed stores , ash is added to it for animals, anyway i can use it for plants and such. it is mainly silica which we already have in us.

been around for 150 years for it's uses, but been on health scene for about 8 per chat group

Post edited by: lken, at: 08/25/2013 11:25 AM


08/26/2013 10:25 PM
Pixie1960
Pixie1960  
Posts: 2205
Group Leader
I'm an Advocate

Dear LinBc,

I have never used DIATOMACEOUS EARTH. Even though it is 100% natural and organic, DE has not been specifically approved for human consumption by the FDA or other goverment agency.

It has a ton of uses, and from what I have heard and researched, DE supposedly has a lot of health benefits when used in food or beverages.

It is easy to purchase, cheap and available. Make certain that if you are planning to use DE for yourself, that it is FOOD GRADE DIATOMACEOUS EARTH.

FYI: DO NOT INHALE!

Hope this helps. Keep us posted on whether you try it or not.

Hugs,

Pixie


08/27/2013 10:00 AM
lken
lken  
Posts: 2827
VIP Member

how can i believe in FDA and USDA, they are run by corporate lobbyists, hard to believe anything they say anymore. anyway trial and error like they old chemists or alchemists of old.

i think it was the corporation greed which make all the strange stuff they put in our foods which caused the problem in 1st place.

it works for me and kills craving for process and sugar foods.

Post edited by: lken, at: 08/27/2013 10:04 AM


08/27/2013 10:27 AM
GmansMom
GmansMom  
Posts: 478
Member

iken,

I agree, for the most part, in what you are saying about the FDA. I never thought too much about it until recently I read one of Joel Saladin's books, "Folks, This Just Ain't Normal" (or something like that... too lazy to look it up.) But he gives some really startling examples of how the FDA is controlling small farmers. I had to put the book away, it discouraged me so much. It made me doubt a whole lot more than just the FDA, and I think I could get obsessed over it if I am not careful. So, I try to not read too much or too deeply.

While they are dismissing some things that could HELP people, presumably by my skewed POV, (I was going to say jaundiced, but given that some of us here have liver issues, I thought that was too close to home Wink), they are allowing/approving others that will prove to be either useless or worse, harmful, all because the drug companies are driving the bus. I have no faith in most of the drugs I am prescribed, not just because I don't think they've been fully vetted, but also because I fear that all the prescribing docs know is what the salesman told them. Sorta like putting the fox in charge of the chicken house. anytime the warnings list is longer than the benefits, IT IS SUSPECT. And when the warnings include DEATH or things that can cause devastating conditions, that should tell us something. And when these warnings are for conditions that are based more on vanity than good health, well... Good luck with that... But, alas, the options are pretty limited. And when I balk at some of these Rx's I'm given, the docs all begin to see me as non-compliant, and eventually, this will affect their level of commitment to me. It is not quite My Way or the Highway, but pretty close.

Post edited by: GmansMom, at: 08/27/2013 10:30 AM


08/27/2013 02:03 PM
GmansMom
GmansMom  
Posts: 478
Member

RE the DE, I am skeptical for obvious reasons, and some not so obvious. I am not saying what is described here is wrong or that I even THINK it is. I think it is just not the whole picture. I did some (brief) searching on DE and any contraindications ... specifically with Hepatic Encephalopathy in mind. For those who may not be familiar with "HE", it comes with those of us with cirrhosis, and is managed via the gut and treatment involves using as first line of defense, Lactulose, a non-absorbable sugar designed to draw out the toxins and flush them out. It induces a controlled level of diarrhea, I'm sorry to say. Many of us also have diabetes as a result of a sick liver, so you will probably find a number of us here. When I looked, I found one forum specifically for cancer, and I found it enlightening. Not especially for the information it contained; there is a lot of disagreement there. What I was struck by was the nature of the disagreements and the way they were handled.

As a testament to MDJ, I must say I have never seen anywhere the type of hostility and venom I saw there. It makes me feel much better about this site. I don't see any such exchanges here. People may not agree, and even say so, but thus far I've never seen anyone stoop to even veiled hostility. More like agree to disagree w/o name calling or the need to BE RIGHT!

Bravo MJD.

As for my tiny bit of research, I am reluctant to try it for myself, if only because I don't know enough to convince me it will not conflict with the lactulose we use. We cannot afford to compromise on this. The consequences are immediate and severe. The pessimist in me tells me that my doctors will most likely poo-poo the idea entirely Wink


08/27/2013 02:11 PM
LinBC
LinBC  
Posts: 2013
Group Leader
I'm an Advocate

I feel fortunate that my doctor seems to really care about me as a person. He took me off Byetta and put me on insulin, said that Byetta should have never been prescribed for me, it hasn't been around long enough. Not Niaspan, flush free niacin.

Everything I'm on has been around at least 10 years, and if there's a way to do it with a supplement I can get at a health food store, we go with that.

When I moved to this area I interviewed doctors, saw 3, chose him. I know my health is fragile and I needed someone who would be as fully invested in my health as I am. I've never asked a question he didn't have an answer to, and he's never told me no to something I've asked for without a reason.

Shop for a doctor you can trust, it just makes things so much easier.


08/27/2013 06:50 PM
Pixie1960
Pixie1960  
Posts: 2205
Group Leader
I'm an Advocate

Dear LinBc,

I couldn't agree more!!! Having a physician that you feel comfortable with is great. Nobody wants to be at the doctors. We're there because we are either sick, something is out of wack or needs to be fixed. So if you have a doctor who can help make you feel comfortable in an uncomfortable situation, and does an excellent job, too... hold on to them. Mutual respect and trust between a doctor and patient is KEY!!! Indeed. Consider yourself lucky and blessed. I know I do.

I have 1 PCP who is absolutely the very best and 8 specialist and I can't say a bad word about any of them! They communicate with me, allow me to communicate with them and they communicate with each other, especially with the sarcoidosis condition. So I feel safe and well taken care of! We as patients need to feel that way, considering all that we have to endure day to day, especially if you are dealing with more than 1 chronic illnesses.

KUDDOS to our doctors!!!!! One less thing to worry about!

Thanks for sharing!

Hugs,

Pixie


08/27/2013 08:11 PM
GmansMom
GmansMom  
Posts: 478
Member

I admire you, and envy your good fortune at having the courage (determination) to shop for an MD. I cannot claim that myself. I have had very bad luck finding a good, reliable doctor. It is like those people who cannot find a good mate, who are somehow drawn to the worst of the bunch. All the advice in the world cannot deter someone who gravitates to the worst. That's me. I am ashamed to say I have had several dump me. They consider me rude. (Actually it is their staff that reacts to me, and it is my Asperger's that gets in the way.) I've had 2 dump me in the last few years. In both cases, they knew I had AS and we had discussed my far of being dumped. The last one didn't actually dump me outright. He just sent me a letter putting me on notice. The effect was the same. I was crushed. No one likes rejection, and when it comes from a person who you'd think could understand, it hurts all the more. In neither case did they tell me exactly what I did (just that I was rude) nor did either even ask me what happened. In one, I just got an unsigned letter, saying as of November 20, they would no longer serve me. This is why I think it was an office manager do it, not the doctor himself.

I am so afraid now that it will happen again that I am afraid to call the staff at all. It is either face-to-face, with the doctor if possible, but NEVER on the phone, and never without good reason. I cannot afford to lose this one. I do not have a great deal of confidence in them, (there are 2 doctors in this office, and I might see either of them, depending on when I go in.) They are nice enough, but I don't think they really pay attention and I have trouble even talking to them at all. But, I don't feel like I have much choice. I know I am the source of the problem but I do not know how to avoid it. I have to think that I am not the only one. It is simply not that easy for everyone.

So, know you are truly ahead in the game, and the reason is your own resourcefulness. Good for you.


08/27/2013 11:03 PM
LinBC
LinBC  
Posts: 2013
Group Leader
I'm an Advocate

shop, make a list of things that are important to you, I get UTIs at the drop of a hat, and can go from "gee, that was uncomfortable" to "OMFG, just shoot me" in about 20 minutes. I'm 56, I know what this is, he will call in something, no biggie.

I hit a rough spot about 3 years ago and rather than start drinking again I ate muffins, a LOT of muffins. So when my A1c went to 9.2 I wasn't surprised at all. I was very honest with him, told him I knew what I was doing, and knew it would have a negative impact. He just asked if I was still sober and increased the number of times a day I test and increased my insulin.

Make a list, what's important to you? Obviously staff is up there in the top 3 or 4. When you interview, your first questions should be for and about the staff. Explain you have AB and tend to get a bit cranky when you're in pain, confused, or whenever it is that you need a little more patience. Find out if they have a nurse or someone else on the staff you can talk to every time there's an issue, or a question.

Do you have email access to your doctor? That's a big deal to me, sometimes I just have a question that can wait for a day or 2 and there's no reason for me to go in, there's no reason to take him, or the staff, away from other patients.

Is there a way to link your doctors together? This was a big deal to me too. At one time I had 3 or 4 doctors prescribing pain meds and tranquilizers to me and it caused a HUGE problem. I go to the University of Utah health care system. I have access to some of the best minds in the country, and they all know what each other is doing or has done, who ran what test and what the result was, and I have only ONE doctor prescribing to me.

Does he not only listen, but does he hear you? Is he open minded or is he a Mormon who believes all you have to do is quit smoking to cure all your health issues? (no offense to Mormons, but there are some in every religion who are like that. I actually had one tell me that that I should go off my birth control and pray every night to not get pregnant).

I am a GL in another forum and I can't say this enough, you have got to be your own advocate, you really have nothing to lose by saying "no, I'm not going to do that", or by finding a doctor who values you as a person, not just another bill he/she can submit for payment.

If you can, take someone with you. I still go in with my 18yr old granddaughter and my husband comes in with me. Bryanna and I both have problems articulating when we're miserable and questions get dropped, answers get scrambled. Take a note book with a list of questions or "symptoms". Make it as easy on yourself as possible.

Post edited by: LinBC, at: 08/27/2013 11:07 PM

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