Hi Teri,
Did I tell u about my collection of DD sufferers stories?
If u would like to add your story, I am behind in getting my book printed.DERCUMS DISEASE, WHAT IS IT. I also want to change it to Dercums Syndrome.
Here are some guide lines for sharing ur story.
You can email ur story to me on
love_charity@hotmail.com
Guidelines;-
1. First noticed a lump, & what age.
When did u notice you were a lot more tired than u felt u should be?
2. How hard was it to get diagnosed & how did u? & your feelings of frustration & how many doctors u had to see before finding a symapthetic ear.
How did u find out about DD, & other associated effects.
Are you married, how many children how old are you etc.
Just a bit of a backgrond.
3. Have u had any trauma, like special traumatic events which had a great effect on u.
4. how has DD affected ur intimate/family relationships.
Incl, sexual.
How & what are u doing to cope with the constant pain & has it changed ur sleeping pattern?
The only thing published, is ur first name & the state u come from or country.
Almost all of our stories are the same or very similar.
join me on FB, as there are many sufferers & we communicate regularly.
Male as well as females.
Young & old.
Take care & I'm happy for u that u have found a caring doctor!
Tell her we need more of her type!
Love & hugs,
Sigrid.
