Dercum's Disease Support Group

Hi Grandmasylvia and everyone else. The DD Brochure is almost ready! It should be done hopefully in the next couple of weeks. For sure before the end of the month. I will continue to keep you posted. I know I keep saying this but the brochure is absolutely amazing! I cannot wait to use it myself.

Huge love and kisses to my Grandmasylvia and to all my DD friends :O)

Yea! can't wait thanks for all the hard work. I have a question about DD. I have blood work done about every 6 months . The last time they could harly find a vain, does anyone else have this problem? thanks ,Wendy

YES - since about 6 months ago! Too many lipomas in areas where the blood is usually drawn from. They now go into the back of my hands with a butterfly needle (I wish they would put some Oral Gel or something to numb this). I actually like this better even though it takes a bit longer.

Annie

If you know they are going for the top of your hand you could maybe try putting lidocaine gel or creme on that area before you go to numb it yourself.

Thank you from the bottom of my heart myladylumps. I can't wait to get the brochure and get copies made at a local printer..if that will be allowed. I want to send them to all the doctors over the years who did not help me...especially the rude ones! I sent Dr Karen an email that my lab needs clarification on the tests she wants done on me. They are willing to do them. I will try to call her office next week. My rheumatologist wrote an order but it was not complete enough as far as the exact tests she wants done. Do you know if the tests have the usual lab numbers? I sent in pictures of me! They are pretty shocking! My son helped me put them on a disc and he could not stand to look at them. Tell Dr Karen I said thanks so much for having the brochure made by all of you wonderful people and tell her I said HELP! Love & Hugs, Grandma Sylvia