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"crohns disease" (moonstar14)

MDJunction to me

tomboykimi"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)

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11/25/2008 06:28 AM
placidcharmer
placidcharmer
 
Posts: 441
Member

Has anyone seen this? I am posting the link online so that more can

sign the petition. Please read!

http://www.petitiononline.com/dd969696/petition.html

copy and paste it if it doesn't form a link.

Love to all!

ChristineW00t

Gentle Hugs,
Christine
Reply

11/25/2008 03:04 PM  Top
jfuller
jfuller
 
Posts: 574
Member

I saw that somewhere when I was searching for information on Dercum's. Thanks for the link...will check it out.
Hugs,
Jennifer

12/09/2008 07:20 AM  Top
SuRi

I signed Smile

12/09/2008 08:14 AM  Top
placidcharmer
placidcharmer
 
Posts: 441
Member

I found out after I read this that it isn't valid until they change the wording to Dr. Herbst being a researcher since it was not listed. Thanks, but for now, it isn't going to work. It has listed that there are NO DD studies currently.
Gentle Hugs,
Christine

Previous discussions I participated in:
Mystery Diagnosis
Happy Thanksgiving!
Dercum's Disease

02/06/2009 03:18 PM  Top
Heidi528
Posts: 16
New Member

FYI- Brand new here. I also live about 15 mins from NORD headquarters in CT -lol.

Previous discussions I participated in:
New Here
Reply

Health Topics: Rare Diseases
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