Dercum's Disease Support Group

I just found this - I don't know if it's already somewhere on this website, but it's got alot of info. on DD stats and answers some of the questions we have about if it's related to other autoimmune diseases (according to this study, anyway.) It's very long, but I skimmed it and thought you all might like to take a look. Some of the pictures at the top are of upsettingly large lipomas - but go past that and scroll down for what you want.

Varna

o.k....what was that about forgetting things??? Here's the website, lol

http://lipomas.spaces.live.com/

thanks will take a look at this!

It is a bunch of info. I'll look through it. I have been compiling everything into one place myself and I put the websites I get the info from because I never can remember anything, kind of like Varna and her link

By the way, it looks like Dr. Herbst (or someone for her) is updating her site). I hope she fixes it so everyone can look at everything on there.

Thanks, Varna! The article is one that is on Dr. Herbst's site. She did a survey of 100 some patients with DD and published results. It is VERY interesting.

Varna..don't be scared by the pictures..most people have few lipomas as bad as the ones in the pictures. They always put pictures of the worst case example in medical pictures. For a paper cut..they show an arm almost cut off. : ) Hugs, Grandma Sylvia

Good point! I must remember that, as I did start to freak out.

hugs back,

Varna

Whew! Those look scary! Mine arent that big yet but i guess they will be eventually?!!!!!

I can't get into that website!