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11/11/2012 08:57 AM

Left shoulder and Left Neck pain.

Tala77WOLF
Tala77WOLF  
Posts: 84
Member

This has been going on for a couple months, but I can't find an injury or mass or anything. I thought it would get better over time but hasnt. I am taking Hydrocodone and have been as well as Soma, asa well as gabapentin. I have been diagnosed with DD, Fibro, and I also feel I have lipoedema.... any insight? Any home remedies I can try? Please help. And most days I wake up as though my body has been in a car accident, I just hurt and am extremely stiff.

UGH!!!!

Please adivise... thanks so much!

soft hugs to you all!

PS KEEP WARM EVERYONE!

Dizzy

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11/11/2012 11:24 AM
Garburt
Posts: 291
Member

I have similar pain but it is on the right side. My massage therapist found a Lipoma under the upper right shoulder that when pushed on causes all my pain. The pain radiates across my neck up my right ear and over my head to my right eye. The Lipoma is exposed to touch if I hold my arm behind my back like being held in a half nelson. I have an appointment to see if it can be removed as I have had fainting spells from it.Smile

Post edited by: Garburt, at: 11/11/2012 11:26 AM


11/11/2012 04:14 PM
ThorPrice
ThorPrice  
Posts: 73
Member

Hi tala, I too have shoulder pain but mine is on both sides. I have fibro ans DD as well. However when i apply pressure around the shoulder socket it is tender. but i get what feels like nerve pain up through the neck and also shooting down my arm. Pain shoots through when I lift something with my arm extended like picking up a gallon of milk on the shelf in the refrigerator. It can also hurt holding my phone up to my ear and throbs and burns if i try to sleep with my arm over my head in bed. It is all very annoying. I take morphine, gabapentin, muscle relaxer, amitryptiline with no relief. I to wake up stiff and very sore in the morning and have for the past 4+ years. Can't find relief. Wish you the best. Wish I could give you a solution. Also i have tried many meds and diet and supplements with no relief.

11/12/2012 08:42 AM
Tala77WOLF
Tala77WOLF  
Posts: 84
Member

Thank you so much for your replies. I try to stretch and get no relief, my back bones pop as if they have arthritis. I have been tested for all kinds of arthritis, but nothing comes back positive. I am only in my mid 30's. I was only diagnosed about 4 years ago with this, as well as Fibromyalgia. Everything else seems to be unravelling. I use to be highly physically active growing up. I am female and used to be able to bike ride about 14 miles a day in my teen years. I used to work out with kick boxing, and all kinds of stuff, including Volley Ball, and Flag football. UGH! I wonder if I should have been tested, or found out about this sooner. I wonder if I knew about this sooner, and if I could have helped myself if I had known.

Does heat help?

Does icy-hot help?

My pain meds don't halp too much...

thanks again for all of your responses.


11/12/2012 09:02 AM
ThorPrice
ThorPrice  
Posts: 73
Member

For me heat and or icy hot never benefited me. warm pool therapy only made me worse. Even taking walks are painful for me. I had a lot more energy by following the RAD diet. For pain I never could get relief, until I was diagnosed with Dercum's. Then I was able to get narcotic pain relievers. I was on a Fentanyl Patch for a year and now morphine. What i found was i could get a 30 - 40% relief. Which to me after nearly 3 years of severe pain was a blessing. This is my normal now and I am grateful. However with both narcotics i did not achieve greater reduction with higher doses and those higher doses brought unwelcome side effects.

I also take prozac and amitryptiline for pain and sleep issues. Neurontin for nerve pain and restless legs. I take a muscle relaxer as needed when my upper and lower back goes into spasm.

All you can do is try anything you can and find what helps the most. Look into the diet as I believe that has helped me with my energy level and reducing brain fog and that helps with overall health.

Best wishes

Jeff


11/13/2012 07:30 PM
Tala77WOLF
Tala77WOLF  
Posts: 84
Member

Thank you so much Jeff. I truly appreciate your insight. I use muscle relaxers, gabapentin (works kinda like lyrica), Hydrocodone (narcotic), Ibuprofen if I am out of all else. I do have brain fog. Some things I can remember from my childhood, and other are...well, a fog! LOL. Some people tell me things, and they seem to slip away. But I write most things down for that, and my smart phone seems to help. The silliest thing is I have an extremem drive for life...and want so much more...but I am held back a bit. If I over do it, ppain/flare up set in...then is migraines for days or on and off for weeks, then a rotation of pain and migraines. I am a home body, but that seems to be comfortable for me. So I have no real social life...besides I am a big city girl living in a rural comunity now with a 9 year old daughter... by myself. I miss where I grew up in Orange County CA, and having the comfort of everything within miles or minutes from where I lived. I changed my life not by choice but by survival when the real estate market crashed about 5 years ago. And then was Diagnosed within 1 1/2 years of living in this little cow town that has turned my world upside down. Everything I thought I once knew was gone. I have no more comfort, but seek every bit of the word in my life now and am empty inside. This beach girl lives in the desert now.... ahhhh what ever. My one day dream is going back to home, especially since home is where the heart is...and my heart is on the coast of california. Or maybe in the arms or a significant other that doesn't judge me for what I was born with or where my life has placed me, but knows I am a good person that wants to love someone the way I want to be loved...and I am rambling. Maybe my meds kicking in, so I should probably turn in for the night. Thank you to all of you for always listening, or advising with what we all go through, though some forget and need reminding. This isn't my first rodeo, and probably wont be my last...I hang in there with the best of them and ride the waves life has gently given us to surf! Thank you to all again, not enough appreciation goes out to those of us with orphan diseases. We just want to belong in a catagory, preferably one that someone can understand.

Oh yeah, my antidepressant that I am currently taking is Wellbutrin... was on cybalta...too expensive.

Good night! and rest easy.


11/14/2012 05:51 AM
grandmasylvia
grandmasylvia  
Posts: 3031
Group Leader
I'm an Advocate

Tala...We sure are a sad bunch of Peeps. We peep around trying everything with mixed results. I use both microwave heating pads and ice bags. Sometimes I have an ice bag on my head and a hot pack on my shoulder. My body does not know what to think! I always have a shit-a-shu or whatever back massager on my lower back. My ankles and legs and feet are swollen all of the time now and they hurt! We all have this thing..we all have these symptoms in common or will probably get them in time. Just take it one day at a time and try whatever you can. My body bosses my around a lot. It will tell me to spend the day in bed..that is how I get behind reading posts and responding. I always read everything within a day or two. I am so afraid that I won't be here for one of you just when you need a sympathetic ear. Tala..when my husband wakes me and brings me coffee..I just sit on the bed with my heavy duty back massager behind me and smoke and drink coffee..then take my 9 morning pills. I gaze down at my feet and see how swollen they still are from the night before. I slowly get in my wheelchair and I'm off to the potty and to start my day. Can you even believe how spoiled I am? My husband turns on the shower for me and gets out my towels and wash cloths. I have a great big shower with shower seats both inside and outside. I love my shower! Then he powders me and puts on my light support hose. Now..I know most of us have chronic fatigue syndrome..so get up an hour early and then you can take your time. Try to diet..lots of people say it helps some. I hate going to bed at night as I know that the next thing I know will be my morning pain. It sound like all of you are taking the drugs that seem to help us the best. I try to take as little as I can as I want to be present in my life but you need to take enough to get the edge off the pain. For me I focus on something else besides the pain and keep my mind off it...not easy! I find that when I am tooling around on my scooter getting bargains for the kids for Christmas..my pain lets us..then I come home and the DD monster punishes me! Stiff as a board I am when I wake up..my husband has to pull me to a sitting position in bed. He takes my CPAP mask off and sits by to listen to my riveting conversation. A lot of times it will be recounting what the Peeps are saying. He knows more about DD than any doctor except Dr Herbst. You are all doing a good job in the fight against our pain. We are all different. You just need to find the right pain meds that will control some of your pain without putting you to sleep..although a little cat nap never hurts anyone. Get as much sleep as you can and drink water. I feel so bad for each of you. Life better give us some major good stuff to balance the bad stuff. I have that in my husband. When my precious granddaughter almost died last month..I decided I can bear anything else as long as the children are alive. I better go take my 10 night pills and get some sleep. You all take care my Peeps and I know just how you all feel and how much goodwill you all have for each other. That is what warms my heart. Take care, Hugs, Grandma Sylvia

11/22/2012 07:35 AM
Tala77WOLF
Tala77WOLF  
Posts: 84
Member

Thank you for sharing. What a mess we all seem to be in from time to time. Well I realised last couple days after rubbing my shoulder I would get in more and more pain. Then I started palpating my shoulder and found tiny little masses on the fromt of it. So now I realise what is actually happenng. More pain.... So it is as it was a few years ago when I started noticung burning sensations in my abdomen as if I was doing stomach crunches...then I started noticing small encapsulated masses forming. So the burning pain was the masses forming and attaching to nerves. Then there was a larger mass forming above my belly button. I think it has stopped growing for now. I just seem to have flare ups in other locations...like my left shoulder for now. So it is rotating throughout my body. And to think For now I only take 4 pills when it is time for bed. As opposed to a few years ago I was taking 5-7. I have cut down where I could. And I am only taking 2 when I wake up in the morning. and 1-2 in the middle of the day. I find that with these meds if I can space them out throughout the day .... I have less drousiness.

Again I would love to thank you all for always posting your advice on here... comments, and more as some of us hang out in the background and just read. Like me.

And for today.... I am thankful for you all!!!! Have a wonderfully blessed Thansgiving!!!


01/03/2013 10:18 AM
huskeydog
Posts: 22
New Member

Thanks Tala for sharing about your L shoulder and neck pain. I have been trying to figure mine out for a few years.

If I get aching teeth in the eve &/or muffing up my words, often during the night or next morning I have a really sore shoulder, neck and headache. Most mornings it hurts to even move my arms since the shoulders scream out. I too have found lumps all around my tender shoulders/shoulder blade.

I have tried to change some of my habits to limit neck movement and it seems to help a bit. Bought a wireless headset for my home phone - don't have to hold the phone to my ear. I put my TV watching chair right in line with the TV so don't have to turn my head to see it most times. Even put a mirror beside the TV so that I can see my husband's face. I like to see my husband's face when I talk to him. I recently bought an electric lounge chair - so I can place the back in a position to support my head. Sometimes my neck is sore or fatigued just holding my head up.

When I am at a meeting - ie church - I sit toward the back so that I don't have to tilt my head up to see the podium. I try to not turn my head side to side to see people participating in a meeting. Sitting in the middle allows a little vision sideways without changing my body. But I have to keep reminding my self not to turn to look.

Even reading a book - try to prop it on a pillow so that I don't have to tilt my head to look down. Also holding a book or paper also gives sore arms.

Even driving, try to hold the bottom of the steering wheel and if one shoulder/arm starts to hurt, give it a rest and use the other arm.


01/03/2013 10:31 AM
huskeydog
Posts: 22
New Member

Hit the wrong keyboard key - so an addendum to the above note on sore neck/shoulders.

Had to make a trip to see a specialist in a big city. Made the mistake of driving myself - always independent. The whole week following could not move my neck or terrible pain. Lived on Tylenol#3 for a few days to even survive and eventally it settled to the usual discomfort. From that episode - realized I have to not drive on multiple lanes that need over shoulder checks for lane changes and safety. Also parking - try to find a drive thru spot of back into the spot. Looking over shoulder to miss cars, pedestrians is just too nasty - if not right then, than later that day and the next.

Asking for help to carry groceries to the car and then the house is also another adjustment. On good days I try to do it myself....but later might regret my stubborn nature.

I have remind myself to appreciate the small things in life - much slowed down to the usual independent pace. I used to love shoveling snow (live in Canada), or stacking wood for the wood furnace. Now, have to be content/thankful that my husband does those chores. Humor for today was sitting watching as our 2 cats tried to catch birds visiting the bird feeder attached to the outside of the balcony door glass.

Thanks group for all your comments - helps in some way to know other people struggle with DD in similar ways and have strategies and info to share.

Happy New Year!

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