http://www.mdjunction.com/forums/dercums-disease-discussions/feed http://www.mdjunction.com/forums/dercums-disease-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Sat, 25 May 2013 10:52:41 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/3158248-results-from-follow-up-visit-with-dr-herbst/limitstart/30#10705990 The Dr. is Dr. Bryrzinski and he cured my twin's breast cancer. He has an amazing track record. He also has a website, visit it and don't wait for Herbst to tell you his name, be proactive. He is fantastic but is located in Houston TEXAS. Good luck to you.... Fri, 24 May 2013 22:59:41 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10485684-eating-right-and-i-got-gout/limitstart/10#10705986 Fructose and sugar are the big bad cause of gout, it blows up you into hyper gout. Husband cut out sugar, honey, fructose...gout almost gone. Now eats purine proteins without flare ups. Need to read about this new stuff online. Google..twohourworkweek and go to this man's website and type in gout and read what he has to say. You will be shocked. Also, Dr. Mercola has a video on fructose and the explosion of gout in our country. It's true. Good luck DD friend.... Fri, 24 May 2013 22:51:58 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/introductions-personal-stories/10704352-brand-new-and-dont-know-what-to-think#10705381 Thanks I will definatly check this out and thanks for welcoming me.... Fri, 24 May 2013 16:06:28 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/brilliant-thoughts/10696265-a-new-plan-towards-achieving-individ-diagnosis-and-treatment-plan/limitstart/10#10704638 I think this is a simply TERRIFIC idea. I have very limited data use per month so I'm not going to be able to help with the research. I look forward to seeing your results though. Bless all of you who have the time and ability to help with this. It is much needed. I am blessed with a wonderful doctor so I really feel for all those who cannot find a good doctor. Unfortunately my doctor is not seeing any new patients and has recently gone into a limited and pre-pay practice where we have to pa... Fri, 24 May 2013 09:18:03 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/medicine-treatments/10702009-liposomal-vitamin-c-more-potenthow-to-make#10703171 Lots of good info on this site. My MIL took so much regular vit C that she damaged her esophagus. Good luck, Grandma Sylvia... Thu, 23 May 2013 15:39:31 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10536930-dercums-blood-test-abnormalities/limitstart/30#10703028 My wife tested high for TGFB-1, I'm pretty sure they have been doing the test wrong. I inquired again and received the following response; As we only provide the requisition for testing, we do not collect the specimens and cannot confirm or be confident that LabCorp’s procedures are sufficient to provide accurate results for this test. Although LabCorp states they are following the procedures as outlined in their system, the likeliness of 3 family members having such elevated results makes... Thu, 23 May 2013 14:06:46 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10610313-rad-diet-from-dr-herbst/limitstart/20#10702569 I also have the largest concentration of lumps on my lower back both sides and suffer back, hip, and leg pain. Both my Daughters and my Mom have them also.... Thu, 23 May 2013 10:06:15 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10677060-denied-social-security-benefits#10698034 If there was a like button. I'd press it. Thanks, your a great help. Grandma Sylvia I guess I'm gonna have to kick some butt, LOL. I had to laugh at the mental thing. For about 3 months....I have these fits of screaming, crying, frustrations due to pain, my doctors, I'm not getting any better, limited activity, help me, when I have bad days. My husband calls them outbursts that need professional attention. I've even screamed at him, explaining, even you, the one I love, doesn't understand how I... Tue, 21 May 2013 12:15:29 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10537456-viral-triggers-of-dercums/limitstart/10#10697682 Somebody please keep going on this ,there could be a link and I sure would like to know what it is.... Tue, 21 May 2013 10:05:26 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10696761-500-members#10697642 when I joined in 11 it was just over 100. strength in numbers.... Tue, 21 May 2013 09:55:40 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/3037626-do-lipomas-invade-organs/limitstart/40#10697554 Thanks chenaya , that is an interesting website. Ihaven't found Bill Munro yet but I will go back later and read more. Thanks, wendy... Tue, 21 May 2013 09:31:11 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/3905549-viral-causes#10696763 Broken link??... Tue, 21 May 2013 00:03:12 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10661684-big-news-about-dr-herbst/limitstart/30#10695770 That you Sylvia. I have to tell you, your demeanor and conversational style reminds me of my mother-in-law. We lost her suddenly several years ago. I miss her so much, so much more than my own mother. My mother was racked with diseases and cancer, so her last years made it almost unbearable to be around. I am glad her suffering ended at age 56. What a terrible thing to say. Only persons who have watched persons suffer can attest to that sentiment. I suspect my mother had Dercum's - her legs and ... Mon, 20 May 2013 14:50:18 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10687792-what-bra-for-you-#10695663 Guess what mayo if Dr. Oz said it can't be true he is a wac. When I did what he said one time I got sick. If you get cancer just wack them off and no more bra problems. When no bra I ware a lite tee shirt under my clothing that helps. Good luck, wendy... Mon, 20 May 2013 14:01:34 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10622029-what-do-lipomas-do-to-body#10695492 Wow, Lynette, so happy to read your comment about the Super Cissus. Happy but also have more questions now. My husband had an accident at work 6 months ago, where he injured his shoulder severely, one of the suppliments I put him on was Super Cissus, because I had seen some good things about it on muscle recovery in body building forums. They felt like he had too much range of motion for there to be a tear in his rotator cuff, (ortho Dr convinced us a MRI was un-necessary), he went through 2 ... Mon, 20 May 2013 12:43:55 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10695442-self-help-including-self-massage-ideas#10695442 I hope some of my personal self help ideas work for you ! Thank you for the shoe info. I also wanted to mention that when my insteps are aching, I try to respond several times a day with the following: I use my full hand, starting at my toes, I sweep up my full leg. I use gentle pressure, trying to focus on the idea of moving the fluids. My legs are so fat, I have to section off the sections I sweep. I sweep each section multiple times. I try to keep the speed down and sweep 5-6 times per sect... Mon, 20 May 2013 12:22:32 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10687806-what-shoe-for-you-#10695412 Thank you for the shoe info. I also wanted to mention that when my insteps are aching, I try to respond several times a day with the following: I use my full hand, starting at my toes, I sweep up my full leg. I use gentle pressure, trying to focus on the idea of moving the fluids. My legs are so fat, I have to section off the sections I sweep. I sweep each section multiple times. I try to keep the speed down and sweep 5-6 times per section. I often get impatient with this task, again so much ar... Mon, 20 May 2013 12:10:43 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10678392-cardiovasular-mri#10694754 The contrast can be hard on the liver. I am one of those allergic to contrast so I have to be über a doc care during any test using it. They have to load me up with some other allergy stuff before giving me the contrast. I feel awful for a long time after but sometimes the MRI is a helpful test. I also take a supplement after to help cleanse the liver of all the toxins.... Mon, 20 May 2013 07:13:43 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10671098-mri-or-ct-scan-of-lipomas#10694677 Thanks for your reply Garburt. Sorry for the delay I was away on holidays. My sister has been readmitted to hospital as she was still bed-ridden, unable to sit and only able to walk a short distance. I think finally she may have met a Dr. who is willing to listen to her and look up Dr. Karen Herbst and see the work she is doing. Thanks for the heads-up re steroid injections. A new pain management team have visited her and seem very interested in her case. They are looking at lidocaine in... Mon, 20 May 2013 06:47:30 -0700 http://www.mdjunction.com/forums/dercums-disease-discussions/general-support/10677062-happy-mothers-day#10694215 Thanks Sheri..it was good for me. Hugs, Grandma Sylvia... Mon, 20 May 2013 01:12:11 -0700