Dementia Support Group

Oh Weezie!!! <<<<<<<<<Huge HUG>>>>>>>>>> Just thank God the babbies are ok and you have to make yourself be more aware of them, maybe a HUGE note big black ink on your door as you head out of it saying REMEMBER THE DOGS or something. I dunno. What ever works for you. I post notes on my walls and I have my notebooks. But sometimes absolutely NOTHING can stop a total "unconcious while concious" period of time, which is what bothers me most and I cry so hard every time I find out about one. and the reason I am writing this righ now is because one JUST happened! I remember some now, but I remember when I got home from my doctor apt. there were no messages on the machine and no missed calls on the caller ID. So I have been sitting here all these hours. And I thought it strange I hadnt heard from Patty cause she calls me like a million times a day! So I picked up the phone, I dont know her number (ANY numbers) but I know it is always right at the top on my caller ID so I hit the ID and there was a call from her, today at 12:30???? But I remember seeing no calls. Then couldnt remember most of the day. So I called her and she said that yes, she called at 12:30 today and that we talked. She said we even had a big fight!! OMG!!! I am soooo scared!!!!!

Thank you, Weezie. Same goes to you if you ever need to chat just give me a hollar.

You said you were just diagnosed on June 2 with MCI. Can I ask how long have you been having problems with this? I am just curious I know everyone is different but I have a hard time excepting the speed this has come on with. A year ago I just was bothered by forgetting something but not enough to worry me and now a year later I would say I feel I could forget "EVERYTHING" any minute now. Got to go. Take care, Daisy

Im sure it will be okay Allison. Im not doin good right now but wanted to respond to your post. Try not to worry bad, its never as bad as we think it is. Take care and if you need someone give me a hollar. Daisy

Wow, this is all so familiar! I'm 48 years old and was just diagnosed with early onset dementia because of a TBI that had occurred over a period of time in an abusive marriage of 22 years. I have what I call 'holes in my thinking' which carries over into my conversations 'BIG TIME' LOL. I have to laugh or I would have no hope at all. My short term memory is almost gone. My husband is frustrated beyond words but is being supportive. My children are amused, scared, ummm they really don't know what to think. My energy level most of the time is non. I make myself get up and work outside, go on my elliptical and stay healthy physically. It's hard though!! Some days, which are many I sit. I'm shocked, but want to try and be strong but I can't all the time. Life. I'm so happy i found this place.

Nice to meet you all!! My name is Jenny. I have a notebook too. If I don't write it down you can know I won't do it and have no clue as that I should have done it.

Hi Jenny, nice to meet you. You sound like your keeping pretty positive. I think that helps alot. I found myself taking the positive path the other day. My significant other asked, probably out of frustration from seeing me in pain, is this how as good as gets? And from my lips came, well honey today maybe not good a good day but maybe tomorow will be a good day and we will just have to take it day by day. I do not know where that burst of positivity came from, thats not my norm. My partner is the one who is usually comforting me. But I noticed my brief calm and positive self made him feel a little better

Wow your pretty young too. Any advice with talking with the kids about this would be appreciated. Ive had bad back for many years so when i dont feel good or need to retreat to my room, we just blame it on my back. I am struggling right now with whats best for them. Sorry sometimes I ramble on. I tried to reread this for messed up words and each time found some so i hope this makes sense tonight. Todays a okay day just a lil fuzzy hehe. Holar if you ever wanna chat. Daisy

Hey Jenny!! We are so much alike! My problems began since I recieved a TBI July 22, 2010 by a horrific beating in the head non-stop for over an hour from my drug crazed paranoid pyscotic brother. Early Dementia from the TBI is on the table but no diagnosis yet. But the past few weeks I have been told I have been psycotic! I even remembering making my husband leave the apt. till I call him back in because I wanted to hurt him badly! I for no reason went off on my two and actually only friends and ruined the friendships! I saw my psyc doc yesterday she said I have been disasociating. I have been having constant flashes of my brothers face and unreasonable fears all of a sudden. Well it is life, we celebrate good aniversaries and we lose our sanity with the bad aniversaries.

Hi allisse,

No, I’m not in such a positive mood all of the time. I was having a good few hours yesterday, but I do try and stay positive. I also have degenerative disc disease. I was diagnosed when I was in my twenties. When they told me it went right over my head and I went on with my life until three years ago when I had C 5-7 fused in which took a lot of pain away. I’m still in pain but try and deal with it the best I know how.

I suppose I need to take your lead and go back and edit my post before posting lol. I go from one topic to another. I skip around and miss words!! Oh well. It is so good to meet you Allisse! I have 6 children 4 of which are adults and are busy with their own families. They worry but I have really not told them the worst of it. We also have an 8 year old and 13 year old at home. Our 8 year old just knows Mom doesn’t feel very well sometimes. Our 13 year old understands in her way what is going on with me and is very helpful. I don’t allow her to over help and make myself get my butt up even when I feel I can’t for my girl’s sake. I cry because I have my young ones and we also have grandchildren. But I try and think of all that I do have. Ok I will be quiet now! lol

Ok, I see what I did lol. I answered msdaisy but put Allisse's name. I'm so sorry! Allisse, I will reply later. I'm sorry again. Having a hard day today

Dont worry about it...maybe tomorow gonna be a great day

OK so I have lost interest in alot of my usual stuff lately(i am not depressed). But I have found one interest to pursue lol hehehehe...I hate reading cause well yall know it takes forever to read stuff and to comprehend well good luck...but im giving it my all right now...im reading a book about communication between a patient and a doctor in regards to chronic illness...i cant wait to see how it ends...im hoping its a positive ending if its good...im gonna give it to my doc to see if she can learn to communicate better with me....just kidding well sort of..maybe we can both learn a thing or two...Wish me luck girls...ill let you know if my experiment works...if not im out of docs in my area...Take care...hope your day gets a lil better Daisy

Well fine! Be that way! LOL