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djfilippone"Before I found this site I felt so alone.  Watching my daughter struggle with IH and being treated like she had two heads from doctors.    I have plenty of family and friends but there was nobody that really knew what she was going through.
I not only have support and love from others who will listen and share their
story, but I have made some forever friends.  Having this support site does make a difference to many.
" (djfilippone)

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De Lange Syndrome Support Group
A community of patients, family members and friends dedicated to dealing with De Lange Syndrome, together.
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De Lange Forums

 
Forum Topics Replies Last Post
 
Introductions & Personal Stories
De Lange Support Group members are welcome to introduce themselves.
Tell your story, share experiences, success stories and failures.
20 11/21/2007 03:13 AM
General & Support
De Lange Support Group questions and answers. Ask the community for their help, provide help for others.
Share your dilemmas, your feelings and experiences. This is the main forum section of the De Lange Support Group.
81 03/09/2011 03:22 AM
Medicine & Treatments
The place to write and ask about De Lange treatments, medication, doctor suggestions, etc.
00 No Posts
Lounge - Off topic discussions
This is where group members can share and discuss their day to day, favourite jokes, fun & games and everything not directly related to De Lange.
11 04/05/2013 07:41 PM

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