My daughter was dx four years ago with cnv!!! I met this dr from texas childrens Dr pablo sanchez and when ever i need him he takes time on the phone to talk to me when ever he can!!all dr should be like him.He is a spechialest on cmv.She had 8 operations that helped her so much,1 vns for seizures 2 adnoids apnea 3tonsils and pallet,tubes in ears fluid removed from ears.3 g tube
4 j tube because of gastric empty delayed 5 nessen reflux^6 pyloriplasty to repair gastric empty problem.
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