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04/14/2008 12:00 PM

My daughter

mickey96
mickey96  
Posts: 9
Member

My daughter was dx four years ago with cnv!!! I met this dr from texas childrens Dr pablo sanchez and when ever i need him he takes time on the phone to talk to me when ever he can!!all dr should be like him.He is a spechialest on cmv.She had 8 operations that helped her so much,1 vns for seizures 2 adnoids apnea 3tonsils and pallet,tubes in ears fluid removed from ears.3 g tube

4 j tube because of gastric empty delayed 5 nessen reflux^6 pyloriplasty to repair gastric empty problem.

7 j tube removed

She now has a better quality of lifeTongue

mickey 96

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