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irishbookfairy Posts: 8
New Member
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Hi guys, I just joined this group and thought I should add a few things that can "maybe" make you feel better. I had Epstein Barr Virus (severe) 4 years ago and because of that I had a very comprimised immune system and was getting sick all the time. I also have severe ringing in my ears that drives me crazy and wakes me up at night also. I have been dx with fibromyalgia and chronic fatigue immune disorder. About 4 months after I was dx with EBV I was tested for CMV and it was an initial infection at the time. Well as bad as the EBV was and it was NOT an initial infection but had come back, the CMV became a chronic viral infection. I found this out recently because I am now a patient at Fibromyalgia and Fatigue Center. They have several across America. I know nothing about CMV other than the fact that I was told that it can flare up as often as every few days. My symptoms are swollen salivary glands and the lymph nodes that are near these glands, especially on my left side where, coincidentally, i have the severe ear ringing problem. I also have severe headaches in the back of my head that spread down my neck and to my shoulders. I am also dizzy a lot. The fatigue has been debalitating. There is hope! I am now on supplements and am taking prescriptions for the fibro and the CFIDS. My doctor at the Fibro and Fatigue Center is a holistic doctor who treats the whole body. She tested me for just about everything and I found out that I have severe hormone problems, hypo AND hyper thyroidism. This is rare. I also have adrenal fatigue, low B-12, low Vitamin D, about 3 years away from FINALLY getting a confirmed dx of rheumatoid arthritis, testing every 6 months for glaucoma, IBS which is turning into spastic colon, HPV, two types of Herpes, and I THINK that is it. All of this I contribute to EBV. Even the CMV. Apparently when one comes out the other likes to come out and play with it. That is the way it was phrased to me. Since I have been on the supplements and meds from the FFC I have begun to notice a big difference. I now have a part time job where I have to stand on my legs sometimes 8 hours a day and I do not feel like I am dying when I come home. I still take about a 2 hour nap but then I am up and doing stuff with my family. I have just started also. I paid for a whole year at FFC and have several months to go. They will be starting me on a viral program in a couple of months to get the CMV under control. They also have given me IMG injections to help me fight off other infections since the CMV leaves my immune system pretty low. It is unfortunate that there are not many people on this board. I do hope that we get to know one another and can share some of our experiences. I dont know what I have in store for me with this CMV. All I know is I am tired of being sick and tired. Take care all! ---irishbookfairy |
Hi this is my first log on to your site and i joined to learn more about what you all are doing to deal with the outbreak of this virus when it occurs. i contracted cmv 18 years ago and the older i get the more often i have an outbreak or any other virus will 'unleash the beast' i havent found one dr. who knows a damn thing and am beginning to feel like its all in my head.... please somebody help!