I am a 47 year old lady

Who has been living with Fibromyalgia for the last 27 yrs, and was also diagnosed with systemic lupus about 12 yrs ago

so now they sometimes refer to my condition as mixed connective tissue disease........ what ever the docs want to call it sadley I am still in terrible pain each and every day of my life.

On top of that I also have Recently developed Cushing syndrome from the years of steroids...........

I have lots of question's and my Doc's seem to not know about Cushing's or maybe they think there is nothing they can do to help ...... I do not know

and have another very painful medical condtion called Hidradenitis Suppurativa

Well that's all the bad stuff.........the good news is I hve 3 wonderful daughters all grown now, and have been recently remarried and now have a wonderful Loving

husband.......... after deing alone for 12yrs He is such a blessing and is so good to me.

My Hugs

I have the steroid induced cushings,have been taking pedisone for 12 yrs or more for SLE Lupus. The Fibro I have had for more than 27 yrs

Do you think a endocrinolgist could be of help to me? I have never seen one, my regular Dr said the only way to maybe help the Cushings would be to stop the predisone but I would really suffer and maybe die from doing that.

Do you have Cushings and Fibo? I would be happy to chat about fibro and cushings maybe we can help each other you could PM me if thats is better for you.

also

There is a great group here on MDJUNCTION.COM it has lots of folks that are wonderul and supportive

Bella

My worst problem with the Cushings is the huge weight gain (150lbs) all seems to be in my belly and breasts.

I eat healthy foods and swim daily but can't lose a pound it just the scale just keeps going up.

The extra pounds make my pain from lupus& fibro even worse I am sure not to mention harder to move, breath everthing.

I wonder if there is anyway to lose the weight, because even last year when I was in the hospital for 7 days with nothing but clear liquid diet, I still did not lose a pound not fair!

I just want to be normal again

I just like the slip on shoes, the make life easier