Crohn's Disease Support Group

Hello. My name is Ken. I just had to get a colonoscopy yesterday because the specialist I saw last week thought I might have Crohn's Disease. Well I do. It looked like someone had taken a piece of sandpaper to my whole colon. I have to get a cat scan to see what else might be damaged and a blood test to see if my blood has enough enzymes to handle the meds I need. I'm still shocked at finding out and very scared by stuff I've read so far.

Hi Ken! Welcome to the group! I'm so sorry for your dx but you have come to a fabulous place for support! If you need more, you can also go to ccfa.org for information to include support groups and events in your area.

My son is nine and was dx last spring. We were finally able to get him into remission in October.

Feel free to ask any questions and look around other posts for ideas/suggestions/education!

{Hugs}

~Kimberly

Thanks Kimberly =) I'm glad that I found this group.

Ken it does sound like you have a good team of Doctors looking out for you. CT scan and blood work. Just educate yourself here with us and ask questions..I know its all overwhelming but you will be okay. Just take some deep breathes and join us. Hugs to you.

Welcome, Ken. I know the information you have seen and heard about Crohn's is scary and definitely not cheerful, but it is not a cookie cutter disease--CD affects everybody differently. We may experience some of the same symptoms, but it does not mean it will happen to you Ken!

keep in constant contact with your GI, keep a journal of your symptoms and definitely feel free to ask questions and keep us posted on what is going on!

Thanks everyone. My biggest fear is that it is affecting my entire colon, but so far I think it's just an inflamation. Luckily my GI seems on the ball and his place Mid Atlantic GI seems really good. I've had symptoms for years. Two doctors told me I have IBS. It's always been a hassle, but I'd always dealt with the pain ok. I started working out back in August and dieting to lower my high blood pressure. I've been doing great with that. I went from 224 lbs to 205 and added a lot of muscle too. 5 more pounds and I can come off my BP meds. I feel physically better in all other ways than I ever did. I went to the GI because I thought I had severe hemmoroids. I'm really trying to keep my hopes high with controlling this. I'm so glad I found you guys. =)

All the best!

This is a great place for information. People who also have the disease understand this part of you life like no one else. It's pretty great to be able to open up about personal health issues and not be embarrassed. All the best.

Hi Ken. Welcome to the family. I know how scared you are right now. I was diagnosed about two years ago and have only recently gotten my emotions in check. Try not to be overwhelmed by all the worst case scenario stories you find online. There are just as many stories of hope. They are just much harder to find. You do not have to face this alone. We are all here to help you get through this. Make lots of notes about your symptoms so you don't forget anything to tell the doctors. Best of luck to you.

Post edited by: Peglet, at: 01/15/2011 02:56 PM

i am newly diagnosed and just looking for answers like everyone else... i was wondering if you can recall your initial symptoms and if you were on antibiotics prior to or within months of your first signs of the disease? Just wondering...it seems after an antibiotic for a sinus infection within the next month my symptoms all started. wondering if there is a link or something?