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Crohn's Disease ForumsGeneral & Supportjoint pain after starting humira
07/02/2012 10:57 PM
crsmith1990
crsmith1990
 
Posts: 16
New Member

Anyone know of any relief remedies for joint pain after starting humira? Heating pads help some, but the pain returns immediately after taking the heating pads off.
Diagnosed with Crohn's Disease Sept. 2006

Appendix, last 7 in. of small intestine and first 6 in. of large intestine removed upon diagnosis

Allergic to Pentasa, Lialda, and mercatopurine.

Scheduled to start Humira within a few weeks after qualifying for financial assistance.
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07/12/2012 07:27 PM  Top
Sephyrie
 
Posts: 35
New Member

Do you get lower back pain and pains down your legs? My joint pain tends to be in my right hip if that counts as a joint and spreads along my back and down my leg. I use hot water bottles to help but I don't know what else to do and it hurts like hell. I am also on humira and not sure if its connected.
Life is not what it makes of you but what you make of it.

07/13/2012 01:06 AM  Top
FriendtoCats
Posts: 8
New Member

Have you tried consulting your doctor about the pain? Heating pads are a great option but yes, pain sometimes returns after they're removed without any relief. There are also special creams out there such as icy hot that can sooth the area but again, I would consult your doctor about what s/he thinks is the best for your pain.

07/17/2012 09:10 PM  Top
crsmith1990
crsmith1990
 
Posts: 16
New Member

Sephyrie- That's exactly where my pain is. I get my third round of shots tomorrow, just one this time thank god! I've noticed that the first 4-5 days after the shot my whole body is really sore, like muscle sore. Then the next 4-5 days my joints are completely unbearable. By the time I finally start to feel "normal" again it's time for another shot.

Have not talked to my Dr. yet, should be checking in with him soon though. Been in this flare up for 2 1/2 months, this being my first major flare since being diagnosed 6 years ago. Hoping for some relief from the Humira soon...

Diagnosed with Crohn's Disease Sept. 2006

Appendix, last 7 in. of small intestine and first 6 in. of large intestine removed upon diagnosis

Allergic to Pentasa, Lialda, and mercatopurine.

Scheduled to start Humira within a few weeks after qualifying for financial assistance.

07/18/2012 12:41 AM  Top
Sierra4414
Sierra4414
 
Posts: 280
Member

I have been on Humira for two years. So far I have had little problems other than some sinus issues. I do get joint pain achy sometimes and I'm tired a lot but I think that's just part of this disease. I had terrible pain with Remicade. That stuff nearly killed me... So I only have that to compare it to. Since switching I have been fairly stable.

My join pain travels. I think I am so used to it that I don't notice it much. I have pain medication for when it gets bad.

Definitely check with your doctor and let him know you're hurting.

Post edited by: Sierra4414, at: 07/18/2012 12:50 AM


07/18/2012 06:11 PM  Top
sparklep
Posts: 37
New Member

It took 4-5 months of being on humira and then I developed joint pain. It went away when I stopped.
Diagnosed w/Crohn's in 2005. Meds: synthroid, allergy meds, B-12 (liquid), multi-vitamin, probiotics, and migraine meds prn, and xanax, and vicodin prn. No surgeries. Trying some alternative therapies to keep my CD in check.

Have tried: sulfasalazine, Asacol, entocort, imuran, humira, remicade (serious joint pain/fatigue stopped after 2 doses), 6MP, cimzia, pentasa

07/18/2012 06:50 PM  Top
JoeG2k11
JoeG2k11
 
Posts: 486
Group Leader

I had joint pain also when on humira and developed nervous system damage.
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