Crohn's Disease Support Group

No problem Chrissie, glad we could help. I was wondering if i should have started another topic for this, anyways I also have issues with severe nervousness/anxiety as well as the vagueness. I find myself droping things a lot and I get usually nervous about simple things like talking on the phone and really didnt have this problem before. It's amazing that this stuff that is supposed to help you makes your life harder...

Funny you should say about dropping things cause I have this issue to. Just a general clumsiness you know? I have had several operations on my arms in the past and I have put it down to that. The anxiety you talk about I get to and now I am wondering if that just happens when the Crohn's is active. I think I've gotta just start a journal and see how many of the symptoms I get are actually tied in with the Crohn's.

The GI clinic i go to is at vanderbilt and my doctor is suppose to be one of the best research and professors at this School. Their whole plan of care with Chron's and UC involves a Psychologist. You see him before the doctor see you. They believe that ibds problems are directly affected by your emotions and your emotions will affect the ibd. Since you nervious system is conected to the digestive system. Hope that helps you a little bit.

Hi again...I am just checking out some of your other posts, and yes, I too feel fuzzy headed at times. I agree that it is due to the lack of absorbtions and the meds. I was an absolute wreck on Prednisone! I didn't feel sharp enough to get behind the wheel of my car! The doctor called it "Prednisone dementia"! I get my labs done every six weeks or so. My iron and B12 are both low. I have gone in for iron infusions and have just started taking B12 shots...low iron and B12 can cause mental foggyness. Have you had your doctor check your levels? It's worth a try. Of course, good old menopause can cause problems too....By the way, from your photo, you look about 20 years younger!! What meds are you on (if that isn't too much of an invasion)? I was also diagnosed about 3 years ago, and I have just hit the big 60 (how can that be??? I think I am only 40)! Anyway, hope you are doing better with the fogginess! Now, I'll go check out your other posts..I feel like we seem to have some of the same issues. Bye for now!

Hiya!

I am in Australia so not sure if the drugs I am on are called the same in the States but here we go! Karvecide (blood pressure), Somac (reflux), Stilnox (I think that's Ambion or something like that in the States and that's for Insomnia) Prednisilone (just gone down to 20 mgs daily), Tramel or Mersyndol (Pain relief), Methotrexate (weekly injections for Crohn's) and vitamin D, Magnesium, Fish Oil and Chromium (to try to stop sugar cravings but it's not working now so maybe that's because of the Prednisilone) I'm exausted just reading the list but the good thing is I used to be on a lot more! I also have charcoal tablets for gas and Buscopan for bowel spasms when needed. BTW your holiday sounds fantastic! I was coming over to the States next year but not sure now as I feel a bit anxious about Health Insurance. What would happen if I got a bowel obstruction when I was over there? Really made me nervous you know?

I bring my husband to all my appointments AND a notebook. It is all so overwhelming and I can never recall everything they are saying. I just got out of the hospital 3 days ago and had teams of doctors around me and unfortunately, not my husband nor my notebook with me everytime and I couldn't even begin to figure out everything they were all saying to me. I made it clear to them that I was overwhlemed and they, of course, understood. As I have said before, this disease not only effects those of us who suffer from it physically, but mentally and emotionally as well.

Also, I too am currently on Prednisone after having a nasty reaction to the Remicade which actually worked for me for six months until it took a nasty turn. I haven't noticed too many side effects from the Prednisone except for night sweats (which suck).

I have the same problem abnd my hubby thinks I am a nut , i am 24 and officially think i have lost my mind, i have to take notes on all details and symptom changes because if not then i have no clue what to tell the doctor, heck there were times i forgot to pay bills, so now my hubby sends them off and i check them off the checklist, i went to the doctor yesterday and nothing is working so they put me on imuran and prednisone in hopes that atleast for a while i can have a break from the crohns and the sjogrens, havent started it yet i am waiting for monday so that atleast a doc is in the office if i have a reaction so they can devise another plan, my doc said there is a rick of pancreaitis and allergic reaction that i would know if i was reacting in a couple of days and i dont feel like starting it on a weekend and ending up in the er with a doc saying go home and we dont know what is causing this and cant get a hold of my gastro,,,,,, i just hope that for everyone here in the forum that all will get better and GOD BLESS U < HAPPY EASTER< I LOVE U ALL AND TJHANKS FOR BEING MY FRIENDS

It just sucks big time I reckon. I have days when I think I'm really good and days when I just get overwhelmed. I just think I would feel better if I got an acutal diagnosis in terms in the bowel strictures. Is it the Chron's or scar thickening or adhesions?. The Drs are talking about doing strictureplasty surgery to widen the narrowings but what if it doesn't work? I have now had about 7 or 8 abdominal surgeries and with keloid scaring it just takes so long to heal and it could be for nothing. The pain relief is not working at the moment cause I have been on it for so long so I am just trying to work through the pain. Sorry to winge but just needed to get it all out. Whew!! feel better now. Thanks guys for this website which allows me to talk about this whole issue

Hi

I only found this site a couple of days ago and reading all your posts has put my mind at ease a little. I'm still in the process of being diagnosed but my doc is fairly certain now.

It never occurred to me that my clumsiness could be attributed to my condition. I regularly drop things and can't find the right word for things when I'm talking.

I'm so glad I found this site.

Hi jessUK1. Sorry to hear that you may have Crohn's. The only good thing is that once you have a diagnosis you can go on from there. I have been in remission in the past and will never ever take that for granted again. In the last few days I have broken one coffee mug and spilt 3 cups of hot drinks. The mental vagueness for me comes and goes. At the very least knowing that I'm not going crazy and it is part of the disease has been really a good thing cause "it's not just me!" All good wishes to you