COPD Support Group

hi ladies and gents. at 545 i got a call for lungs wow talk about fast right. well, its ok it didnt go as planned which is most likly meant to be, everything has a reason, so i was told by my tx buddys that this is my warning,next one will be for real, , they said itll be soon but wow i dint think this soon, now i hope they hurry while my oats are still strong hahahahah well, my daughter will post here for me, ( nicole ) if i dont have time, i have 30 min to leave my house,this was a dry call so i dont want u thinkin owow she couldnt update , its time so thats why i said nicole will do it for me, plus facebook so now well see, Ever hear of ex-vivo lungs, I signed up for them, my surgon invented the machine, people are swearing by them and they seem to do better with exvivo then reg donor lungs.so well see. you can goggle exvivo and dr frank Dovidieo is my transplant surgon ) he the one I call dr HOUSE REMEMBER !! LMAO yeaa well him, so guys have a safe breath easy wkend ok. ill be here later tring to update here and then my journals ) luv you all. xoxox

I just get goose bumps every time I read this.

I couldn't be happier for you love you so much, River

I'm glad they're saying it won't be much longer so you don't have to wait so long. Good luck with everything and may God be with you!

I'm with River. I feel like we have gone through this with you and the reality is starting to set in. I'm just so happy for you. You have been so brave through all this. Quite the role model girl. Rock on!!!!!!!

Same here JoJo u are going to do great I feel it in my bones. Just hope ur wait is short. love ya.

tHANX LADIES

i hope its short also, i hear that this is the time they tx the most warmer weather, b/c everyone is active ,partyen, drinking, makes sence but sad also. yea i have a feeling iam gona do very well. i been workin out so im getting stronger. lol. gained 2 pounds too.woot wooot now all i have to do is stay healthy sue yes u guys are going threw my journey with me, couldnt do it any other way when goin for tx u need a good support team,Im lucky let me tell you, i have a great family,kids husband, friends then my friends here,its a wonderful thing u no )

well whats on the angenda today, im gona be home, mayb go shoppin alil in target pick up alil stuff i might need worse thing for me to do is sit by the phone if i miss the call home they go to my cell then down the line i had to give them a bunch of numbers incase they cant get me .. so might as well try and be useful today right hahah ok well have a safe day there today holiday wkend ppl drinkin driving, dumm asses xoxoxo

I wrote a long message to you and somehow it got swallowed up!

Its happened to me before on this site so i gave up..

Just wanted to say good luck...Thanks for being so brave and courageous and for paving the way for the rest of us..

hii butterone thanx so much.. where ya been hiding, lmao yeaa you no how many I write then its gone, dont worry..i give up also lol nice to see ya around and i sure hope life is good and ur enjoying the warmer weather . xoxooxo hug

Unfortunately its winter in new zealand...and my lungs hate the cold air!

But im not going to complain...

Ive done pulmonary rehab and that was wonderful. it taught me so much about this crappy disease.

I told my doctor today that I was going to get new lungs one day and he laughed! said oh yeah where from? are you going to have someone bumped off ..

I cant wait to see how well you do and ill show him your journey..

Like i said before, thankyou ...

Big hugs and lots of good karma xox

so glad to hear that you will be getting them soon.....ove ya girl your an insiration to all of us

Kim