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"my sister in law died of Spina Bifida" (cwhite060708)

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MissNikkiAnn"When you have an illness with the name "Non-Familial Dysautonomia" (a name that most people, and even doctors, have never heard of), you need a network
of people who understand the name and the symptoms/issues that come with it.
MDJunction led me to that network of people during a very confusing and sickly time. For this I am thankful. And for this reason I try my best to give back to other members the same care and help that I received through MDJunction.
" (MissNikkiAnn)

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COPD ForumsGeneral & SupportGood Morning lets have coffee
10/24/2011 12:32 AM
River
River
 
Posts: 3465
VIP Member
I'm an Advocate

How are you my dear family. Have we anymore news on Laura?

I am less SOB this morning less pain as well. I am still sleeping a good deal of the time...so very tired.

I see my new pulmanary this afternoon...praying he is a good one.

Heres the coffee. Much love hugs and prayers River teapot

Life, Love, Laughter
What I say here is in no way intended to be medical advice. Please see your doctor.

God put me on earth to do a certain number of things...right now I am so far behind I will never die
Reply

10/24/2011 02:57 AM  Top
goopy
goopy
 
Posts: 6500
VIP Member

River

Good morning glad ur breathing better today. Too early for me to tell. I wish I knew what makes us soo sleepy all the time. Wish we could hear good news about Laura too. Well I hope ur monday goes well. Later gaterSmile Smile Smile Smile

This site is not intended to be a substitutaion for professional care.Please know I am not a professional care provider. My opions and responses are personal only.

10/24/2011 03:36 AM  Top
vikingfan
vikingfan
 
Posts: 6243
Group Leader

That's really good news River. I'm glad you have a new Pulmo. You should go armed with a list of questions for him/her.

All this COPD stuff can be so dang scarry!!!!!


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copd
Dear sweet family

10/24/2011 07:29 AM  Top
lor
lor
 
Posts: 493
Senior Member

Good Morning River,

So glad to hear you are less SOB and in less pain! Good Luck with the new Pulmonary Dr. I sure hope he is a good one. Sending prayers for you, lori~


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Dear sweet family
Back again!

10/24/2011 10:02 AM  Top
PAGIRL48
 
Posts: 643
Member

Not sure - but I think I read that the lack of oxygen - (caused by trouble breathing and lower lung capacity) makes you tired because you don't get enough oxygen into the blood.

Might want to check and see if your doc tells you the same thing - or something else you can share.

Love and hugs,

Gail


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Had a rough day
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10/24/2011 10:57 AM  Top
goopy
goopy
 
Posts: 6500
VIP Member

Gail

I am trying to get a sleep study now I really have not had the kind of dr I would have liked that would have tried to help me figure these things out they were the kind that were like u bad u got to deal with it standard routine for everybody although we no it doesnt effect everyone exactly the same but what do u do.?? Smile Smile Smile Smile

This site is not intended to be a substitutaion for professional care.Please know I am not a professional care provider. My opions and responses are personal only.

10/24/2011 01:24 PM  Top
redneck
redneck
 
Posts: 43
Member

goopy i had a dr that i went to said i just had a bad cold handed he handed me a piece of paper follow the directions then he said your a bigger cry baby than most of my copd patients i found a new dr and he put me in the hospital right away i was dianosed with 3rd stage copd

10/24/2011 01:37 PM  Top
vikingfan
vikingfan
 
Posts: 6243
Group Leader

That's pathetic. I never wish this desease on anyone but.............

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copd
Dear sweet family

10/24/2011 02:05 PM  Top
goopy
goopy
 
Posts: 6500
VIP Member

Redneck I know u have to get the right Dr. One that really cares whether u get better not just run u through as fast as they can to make the big bucks. Hope u got a good one now. Smile Smile Smile
This site is not intended to be a substitutaion for professional care.Please know I am not a professional care provider. My opions and responses are personal only.

10/25/2011 04:44 AM  Top
vikingfan
vikingfan
 
Posts: 6243
Group Leader

tuesday25

Good morning!!!!!! Actually feeling a little better today. Pain is subsiding finally. I don't remember being in this much pain after having C-sections but then I didn't have any spare tires hanging on the incision either.

My neighbors have checked on me everyday. I'm getting pretty spoiled. Lots of home made food. I'm going to have to really step up my game when I'm better so I can return their love.

Goals today, Shower, unload dishwasher, be nice to myself!!! LOL

What are you guys up to?

Sue


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copd
Dear sweet family
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