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Conn's Syndrome Support Group
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05/04/2008 11:22
Sammi8265
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Posts: 5
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Hi everyone. My name is Samantha, and im 22years old. I'm getting

tested now for Conn's Syndrome. I was diagnosed before with

Apparent Mineralocorticoid Excess (AME)back in 2005. I was seeing a

Nephrologist at that time. I had a 24 hour urine done and that is how

he came up with the diagnosis. I was taking Inspra while the test was

done, and I'm not sure if that would affect the results. I had

periodic low potassiums that range from 2.9-4.3 on a really good day.

I was also diagnosed with Familial Periodic Paralysis by a differant

Nephrologist while admitted to the hospital in 2004. My plasma renin

is low, K+ low some times, and aldosterone high. I took spiro 100mg

twice daily and developed a rash on my stomach and my heart would

beat out of my chest like a drum. I felt worse on the spiro that when

i was on nothing. Im now taking nothing, however am feeling not that

good.

I was diagnosed recently with Fibromyalgia by the rheumatologist,

however my primary thinks i have Chronic Fatige Syndrome.

I have a nodule on my thyroid isthmus and had ultrasounds and a

biopsy of it before. Im getting a new ultrasound sometime soon.

How do they tell if you have a nodule/cyst on your adrenal gland?

The new endocrinologist had ordered a lot of tests. I have many many

symptoms. Which include...

* Fatigue

* Headaches

* Leg cramps

* Arm pain

* Joint pain

* Back pain

* low grade fever

* throat pain and a buring sensation in the middle of my neck

(however was told the thyroid nodule presses on my throat and once

was admitted because i couldnt swallow they said it was pressing on

my larynx)

* heart palpatations

* chest pain

* dizziness

* feet sweat for no reason, even if im barefoot

* hands/ face get numb or feel like pins and needles

If anyone experiances these symptoms please let me know.

Thank you all for taking the time to read this.

Samantha

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06/05/2008 09:20
svenskamama
Posts: 2
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my daughter , 22 has nearly all your symptoms PLUS many episodes of loss of consciousness and sudden swollen joints that made them chase lupus but to no avail - she has undergone neuro investigation and every cardio test- her brain EEG is showing 'irregular' but not epileptic spikes ... we dont know if this is related - she is on a beta blocker - isoptine just to keep her heart rate below 100- we are hoping the root cause of adrenal issue is now about to come to light after many many specialists - we are in Ottawa Canada - had to register via a U.S> State so last home was Rhode Island - how long to relief once a diagnosis - I keep hoping this Diagnosis will be the step to a miracle cure - but sonds much more on-going for you ? I thought day to day symptoms would be relieved quickly once the problem was identified ?
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