Why wear a ribbon?

"My husband was diagnosed with leukemia April 2011. " (redroses)

MDJunction to me

"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv" (Macv)

more testimonials

Congenital Diaphragmatic Hernia Group

A community of patients, family members and friends dedicated to dealing with Congenital Diaphragmatic Hernia, together.

Group Home

Forums

Articles

Members (46)

Diaries

Videos

Leaders

Guidelines

CDH Forums › Introductions & Personal Stories › I am New

08/22/2008 09:21 PM

I am New

danems

Posts: 1
New Member

Hi, my name is Emma i'm 27 and I am due to give birth on the 24th September to a baby girl who's recently been diagnosed with CDH... the doctors havent really been able to tell us alot, Leaves us very uncertain of what to expect, just hope she's a little fighter!

08/24/2008 08:56 AM Top

thompsod

Posts: 6
New Member

Hi Emma! Your girl will be a fighter! They all are. Smile

Everyone's battle with CDH is different. Keep the faith, always think postive, pray for strength and never forget to thank God no matter what! I will keep you guys in my prayers. Keep us posted! Smile

Previous discussions I participated in:
New member

10/08/2008 05:09 PM Top

thompsod

Posts: 6
New Member

Hi Emma,

How are you guys? I've been waiting to hear from you, I hope all is well.

Debbie

Previous discussions I participated in:
New member

Health Topics: Birth, Doctors, Strength

Share this discussion with your friends:

Members who viewed this page also read:

recently diagnosed PE, what 2 expect ...
Recently diagnosed with ALL. What sho...
Baby girl newly diagnosed

Sorry I havent been around alot
how did you birth/ planning to give b...
I hope she's serious!

CDH › CDH Forums › Introductions & Personal Stories › I am New

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.

Why wear a ribbon?

MDJunction to me

Related Topics

Congenital Diaphragmatic Hernia Group