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Congenital Diaphragmatic Hernia Support Group
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CDH Community CDH Support Forums Introductions & Personal Stories In memory of Kayla - 14 months old
In memory of Kayla - 14 months old
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08/20/2008 05:44
stilljan2
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 My granddughter kayla was diagnosed with CDH at 22 weeks of pregnancy at Columbia Presbyterian Hospital in NYC. We were fortunate that after the repair she was able to come home as many of these beautiful children don't. But as a result of the damage done to her lungs by the CDH she was diagnosed with severe pulmonary hypertension. After a 14 month battle Kayla passed away. Her doctor stated in her eulogy that Kayla showed "joyful courage". She was never unhappy, always smiling, unaware at how sick she was. She accepted our love and gave love back to us 10 fold. She was an inspiration to us all.

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