thompsod
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I just wanted to introduce myself. I'm Debbie, I lost my granddaughter to CDH 5/24/08. She was born at U of M hospital in Ann Arbor, Mi. She was born 5/2/08. She had one of the worse cases they had seen. When she was born she was immediately put on ECMO. She just held her own, she didn't get better or worse. She was a fighter they said. They trialed her off ECMO everyday. She did progressively better each time. On 5/22 she was trialed off and did really well. The protocol was if she stayed off 24 hours they would take her off ECMO. She did! They removed the tubes and she was doing well. They were calling her the "miracle baby". By sun evening she was not doing well. Her oxygen levels were very low. They had the vent pumping very hard. It was a horrible site! She passed away on mon morning,(the holiday). We were all devastated! The doctor's and nurses kept telling us how sorry they were. We are all getting better each day. With a strong belief in God, we know she was taken for a reason. I hope I didn't dash anyones hopes. But, believe me everyone's situation with CDH is different! Just leave it in God's hands. |
But through prayer and support like this site and the CHERUBS site I'm getting through. We just had her headstone put down last friday, it's beautiful. I will add you and your family to my daily prayers! Take Care. Debbie
"I joined this site when i hit my ultimate low. Joining has helped me connect with others who understand me and how i feel and has helped me keep some sanity in my life.
