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Cirrhosis Support Group
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04/24/2012 09:01 AM
1polarbear
1polarbear  
Posts: 619
Member

What labs did you have done that you were told pointed to a diagnosis of cirrhosis? Just curious.

Post edited by: 1polarbear, at: 04/24/2012 09:06 AM

Journey well,
Robyn
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04/24/2012 01:49 PM  Top
sadlystillsane
sadlystillsane  
Posts: 942
Member

I am with Polarbear.......

A diagnosis of cirrhosis based on labs alone is rare and often wrong.

A cT scan, MRI or Ultrasound MIGHT show cirrhosis but may also miss it.

A biopsy is the gold standard and only 100% accurate way of diagnosing cirrhosis.

Now having said that, elevated liver enzymes usually point to an issue with the liver, as does ascites. BUT that doesn't mean you have full blown cirrhosis. My labs were insane (ALP was almost 700 normal is under 100 I think) and I had ascites as well but back then I still only had fibrosis for the most part.....

Again I am with Polarbear, what prompted that diagnosis and if it was labs alone, I suggest more be done, and be done by a Hepatologist specifically.

Take your time to smell the roses, and always follow your heart.

04/24/2012 04:07 PM  Top
Virginiamom
Posts: 100
Member

When the Docs were relying on labs they were saying cirrhosis. Nowthat time has gone by the Docs refer to her condition as Alcoholic Hepatitis (curable) To this day I don't think they really know. Just that her labs are now almost normal and she is pretty healthy.

Hang in there! It will take time to sort this out.


04/24/2012 06:31 PM  Top
mikealpha1
mikealpha1  
Posts: 2068
Group Leader

Hepatitis means inflammation of the liver. Alcoholic, viral... refers to the cause. Just like bronchitis or sinusitis, depending on the cause, people can recover from hepatitis.
Peace be with you,

Mike

04/25/2012 06:10 AM  Top
DEH70
DEH70  
Posts: 79
Member

@ polarbear: not sure which tests they did but was told that "full" testing was ordered.

@ Sadly: They have not done a CT scan, a MRI or a Ultrasound yet.

@ Virgina: I don't think they know in my case either, maybe they were just getting sick of me calling everyday asking what was wrong with me a didn't have an answer.

@ mike: They did tell it was "non" hepatitis related cirrhosis, it may be time to find a new Doctor.

Derek

"I live in my own little world, It's okay though everyone here knows me."

04/25/2012 07:11 AM  Top
mikealpha1
mikealpha1  
Posts: 2068
Group Leader

"non" hepatitis related probably means non-viral i.e. Hep B or C. as that is what most people think about when they hear the word hepatitis.
Peace be with you,

Mike

04/25/2012 08:07 AM  Top
tabbtech
tabbtech  
Posts: 495
Member

DEH70: Welcome to this wonderful group. I think some of the others are curious about how your doctor diagnosed Cirrhosis with just blood tests. Usually there would be a biopsy, but not always.

I was diagnosed with just blood tests and a physical examination. Among other things the blood test showed very low platelets 51,000, and INR at 1.2, the physical exam the doctor found I had a very swollen and very sore Liver and Spleen. They didn't want to do a biopsy because of the possible bleeding problems, so they did this additional set of blood tests usually done for Hep. C patients. But actually before that blood test right when he was done with the physical exam, he told me I had Cirrhosis and then ran out of the room. Later the diagnosis was confirmed with an US which also showed Portal-Hypertension.

They told me I don't need a biopsy to tell them what is already obvious. Yes I have Cirrhosis but the cause is still listed as idiopathic, which leaves me wondering what a biopsy would tell them that is not obvious.

Peace and Joy to All

Paul


04/27/2012 07:29 AM  Top
DEH70
DEH70  
Posts: 79
Member

Oops: on a side note, they have me on "Lactulose" not "Lasix".
Derek

"I live in my own little world, It's okay though everyone here knows me."

04/27/2012 07:32 AM  Top
1polarbear
1polarbear  
Posts: 619
Member

Lactulose is a totally different medication for totally different complications. It is a laxative to help you rid the body of toxins that build up in your digestive track. Lasix is a water pill that helps you rid the body of extra fluid.
Journey well,
Robyn

04/27/2012 12:46 PM  Top
mikealpha1
mikealpha1  
Posts: 2068
Group Leader

Paul, that's one of those things, sure they don't need a biopsy to tell you you have cirrhosis, but sometimes that's the only way to tell the cause. That was my case. My alpha-1 didn't show in the lab results, but one look at the way the scarring was occurring by biopsy and it was identified.
Peace be with you,

Mike
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