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04/07/2012 08:38 PM

Any false readings on random urine alcohol screen(page 2)

pmary
Posts: 37
Member

I am still determined to try to get to the bottom of this error, as it could happen again if I continue taking lorezapam, or get another chemoembolization treatment. I'm not approved for the list yet as they are looking at a spot that showed up on an xray and cat scan, and though two doctors said it was fine, they want me to have a biopsy, so off to a thoraic surgeon this week for his opinion. If that turns out okay, the "alcohol" thing could disqualify me if I canpt find out what caused it. I had another test but they didn't give me the result, and I still want the first one removed. I really question the ability of some medical people. I go to one of the top notch universities for the chemoembo, they said I was leaking a clear fluid from the puncture site after they brought me to recovery, and then it stopped. A week later it started again, and no one knows what it is. I've gone to three of my doctors as the clear water oozes out slowly (I don't have ascites), have no pain with it either. So finally the NP in the Radiology Dept where the surgeon did the procedure saw me on Thursday. He's been there for 20 years and never saw anyone with this problem. So he covered it up except for one small opening for it to drain rather than build up, then covered it with a square pad (which is sealed all around anyway), and now it is swelling like a boil and hurts, probably because the fluid can't get out. Can't find one doctor to tell me what it is or treat it!

Between this and the alcohol testing, I am an emotional mess, which we all know is not good for our health. THANKS FOR LETTING ME VENT!

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04/11/2012 08:25 PM
sammy566
sammy566  
Posts: 339
Member

Wow Ru!

Everyday is a school day.

I learned something new.

Thank you.

Sammy


04/21/2012 07:50 PM
pmary
Posts: 37
Member

Just wanted to bring everyone up to date on my false urine testing, in case any of you ever have this problem. Although a few of my specialists have said they believe the chemoembolization caused the false urine reading, the transplant team won't budge. They say I now have to wait six months to be considered again. I cry a lot and I am very upset as it could happen again because I don't know what happened the first time. A blood test three days later showed negative to alcohol. Now I have to go to alchol counseling, and I don't even drink, and have barely drank during my lifetime. I was Verced and Fentynal during the procedure, but they say neither of those have alcohol in them. It is driving me crazy as I didn't do anything wrong and now my life is at stake should my liver get worse while I'm waiting. Anybody have any ideas or similar experience?

04/22/2012 05:59 AM
Virginiamom
Posts: 100
Member

Maybe you could have your own test tone every day?

04/22/2012 09:50 AM
sadlystillsane
sadlystillsane  
Posts: 942
Member

Alcohol only shows on a screen for about hours and a blood test is the most reliable way to check blood alcohol content.

I would get testing done at a private lab if you can to show the team..and obviously an alcohol counsellor is going to figure out you aren't a drinker. That should count for something.

My Hep has never even mentioned testing me for anything, I think he just assumes I don't drink due to the cause of my cirrhosis. I am not 'officially listed' but it is so different here...


04/23/2012 09:27 AM
iwiham1027
iwiham1027  
Posts: 940
Member

I have never been tested for alcohol either? Of course I don't drink and am not listed as of yet! However what is this chemoembolization treatment? I have never heard of this and would like to know. Pherhaps that has some alcohol in it?

cheryl


04/23/2012 09:37 AM
dmanflan
dmanflan  
Posts: 1735
Group Leader
I'm an Advocate

Hey Cheryl!

In chemoembolization, anti-cancer drugs are injected directly into the blood vessel feeding a cancerous tumor. In addition, synthetic material called an embolic agent is placed inside the blood vessels that supply blood to the tumor, in effect trapping the chemotherapy in the tumor. http://www.radiologyinfo.org/en/info.cfm?pg=chemoembol

It is possible that some of the drugs administered in the process may have caused a false positive reading for alcohol as there doesn't seem to be any other explanation for pmary's test result.

Post edited by: dmanflan, at: 04/23/2012 09:41 AM


04/23/2012 10:05 AM
pmary
Posts: 37
Member

I was really depressed yesterday about all that is going on and just couldn't get online to thank you all for responding. I know I have to stay strong, but it's hard when I've done everything they have asked (test wise)and followed up with biopsies, and was even going to have my thymus removed even though the surgeon felt a nodule on it was benign,I was willing to go through the risky procedure and the committee insisted it come outso they could be 100% sure it was benign. They still want the surgery done but I will wait now since they are forcing me to wait. This has been so upsetting. Even though I was diagnosed with having hemochromotosis and alpha 1, both contributing to the liver cirrhosis, the focus is always on alcohol. It's sad enough that that is the perception of most people (that people with cirrhosis drink a lot), but to have doctors focus on it is very upsetting when you've given them a history of your whole life. The only thing I ever drank was a glass of wine with dinner, and this was recommended by my doctor as I had given up smoking and was going through some very sad tragedies in my life. I'm having another chemoembolization treatment in June and just hope I don't wind up with another positive, though I am asking for a bloodtest this time. Most of my doctors feel the chemo caused it, because even my lab work was terrible two weeks after the procedure, but now my labs are better than they've been in a long time. The chemo agent used was Adriamycin. I assume they will use the same one next time. I'm losing my fight, and wonder if a transplant is worth all this. I'm an honest, ethical and religious person and they have questioned all my values by their focus on this one result and the focus on alcohol rather than the diseases that caused my problem. And now having to wait another six months to be considered. Just can't understand why it happened and there is no way to prevent it from happening again when it is an unknown. God is really challenging me.

04/23/2012 10:59 AM
sadlystillsane
sadlystillsane  
Posts: 942
Member

This is awful, and it seems that the REAL cause for your cirrhosis is once again, getting swallowed up in the whole 'cirrhosis is for alcoholics' mentality, which to you and to myself is so frustrating....given that alcohol had NOTHING to do with how we got ill.

I have you in my thoughts and I am so sorry this is happening to you. It is just dreadful that when they know why you have cirrhosis they are hung up on alcohol....


04/23/2012 11:18 AM
pmary
Posts: 37
Member

Yep, it really is sad that doctors themselves have this mentality and so unfair to us patients. My first appt with my gastro dr and he wanted me to remember what I drank when I was 18 years old? Now what difference would that make and how would I remember when I hadn't drank for 35 years after that? I am going to speak up about it one of these days when I can even get into a doctor, and tell them how awful they make us feel. Bag enough the stigma of the general public but it shouldn't come from doctors, too. The hepatologist at the University I go to (an hour away), since we don't have one in town (just a part time one that doesn't go to the hospital in my plan), I only saw once back in January. So I rely on the care of a gastro doctor here which leaves a lot to be desired. I had a consult with the part time hepatologist in town that we do have, and she was really nice, but she said she would call me back after doing some research on the alcohol thing, but never did. So I guess she's another one that doesn't follow through. I have 7 or 8 doctors (because of all the different tests I've needed to qualify) and can't get answers or appts when needed. This has been a real learning experience.
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