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02/09/2012 09:43 AM

Question regarding encephalopathy

DonnaDRN
Posts: 2
New Member

Hi, I'm new here. My sister is in end-stage cirrhosis at 56 years old. My question is she has had several episodes of encephalopathy. Does encephalopathy cause brain damage at all, brain cell loss/death; as, she doesn't seem quite the same each time she returns back to "normal?" I am her main support person medically; she lives with her son who just won't help in her care as he says, "He just can't do it, can't take it any more." I'm in FL and she lives in PA, but we talk during the day. She is being evaluated for transplant list, but specialists say they don't think she will be a good candidate. Thank you for letting me share.
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02/09/2012 10:30 AM
mikealpha1
mikealpha1  
Posts: 2286
Group Leader

Encephalopathy was big for me. Starting with driving two hours without being aware of it, waking up two days later in 2009. I experience all the levels up to a coma right before my transplant. Usually my wife was able to get me back to a relatively good state by adjusting my lactulose dosage. The big thing, in answer to your question, there was no brain damage. In fact, when I awoke after my transplant (last year) I IMMEDIATELY noticed how clear my mind was.

The encephalopathy is a symptom of the liver disease (when it is hepatic encephalopathy), as such it is not the cause of death. However, I can't say that the livers inability to filter the toxins as it fails couldn't cause brain damage.


02/09/2012 11:29 AM
DonnaDRN
Posts: 2
New Member

Thank you, Mike. That will help she and I tremendously for reassurance. I'm so happy you got the transplant. Keep well.

02/09/2012 07:31 PM
Bucksfan1
 
Posts: 38
Member

I'm so sorry! So she still is home taking care of herself??? Have you called in Hospice? You have came to a great place...everyone here is honest and caring...I'm so thankful I found this site.. Sending prayers your way..keep us posted!

Take care, Heather


02/10/2012 07:15 AM
mpmom
mpmom  
Posts: 3275
VIP Member
I'm an Advocate

DonnaDRN,

Find out why they don't think she will be a good candidate.although their are times when a persons health will keep them from being a "Good" Candidate Sometimes it's possible to correct a issue. Sometimes you may have to find another center.


02/10/2012 07:17 AM
1polarbear
1polarbear  
Posts: 619
Member

welcome to the group! I wish your sister wasn't going through this, or you being so far away. Sending positive thoughts for strength to you both. Let us know how she is doing.
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