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Just plain tired!



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03/08/2008 16:52
Want2BWife
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I am here to gain a better understanding of my husband and his pain. We have been together for almost 10 years and in that time he has had 3 of 4 back surgeries, been diagnosed with bipolar, severe anxiety & seasonal affective disorder. The most recent surgery was April 30, 2007 of which he had all 5 levels of his Lumbar spine fused. Recovery time is 1-2 years. Shortly after that we were told that his thoracic spine (T11-T12 & T12-L1) is not looking good therefore he had a radio-frequency denervation done yesterday. It seems like every time I turn around he has to have another procedure. He's not the best of patients either. Very "needy". I work 40+ hours a week and he is on disability. He has so many Dr. appts. to attend that he thinks I need to go with him. If I did, I would never be at work. UUGGHHH!!! I'm just so tired of the "caregiver" role and just want to be a wife. I wonder how long I will have this in me. Anyway, I'm just here hoping to open my mind so that I'm not so frustrated anymore.
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03/09/2008 13:16
Want2BWife
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I know it sounds pretty self-centered in my paragraph above however that is what I was feeling yesterday. I'm not like that every day but it was all too overwhelming to me. Today I'm doing okay. Husband went to watch the NASCAR race with some friends and it has given me the opportunity to just relax by myself for 4-5 hours. I decided to spoil myself as I took a long hot shower and now am just kicking back. It's so hard to get time for ME when so much is going on with him. Don't get me wrong, I love him with all my heart. There's just so much going on with him physically and mentally. I just have to continue to deal with this on a daily basis.
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03/10/2008 19:23
fibroforever
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Oh honey...

You are not self-centered. You are just concerned, and that's okay!

Sounds like you're really, really, trying to be there for him. He must be so appreciative!

Working so many hours, and being there for him physically and emotionally will certainly take a strain on you. You're gonna just have to "make" time for you. I know it's hard, I really do. But you've got to! That's the only way you're gonna make it through the weeks. So put it on your calendar. Make it a weekly thing. Even if it's just an extremely long soak in the tub. Turn the radio up, pour in some bubbles, light a candle, and dream of a different place.

My hubby is the one taking care of me. He's a wonderful guy. I appreciate him SO much! And I "try" to make sure that he has time for himself. He doesn't like to take it, and part of it is the fact that he's a man. But, he just has to. Sometimes, it's even just a visit to his parents. But he 'has' to get away from the house, work, this crazy world- at least once a week. -I remind him that he's no good to anybody if he doesn't. He works 6 days a week, comes home and does laundry, cooking, sometimes some cleaning, takes me to the store, etc. The list never ends. I do take myself to my doctor's appts. Cause yeah- he would never be at work if he went with me all the time.

You WILL be okay. Just take it one day at a time. Don't fret about the past and don't worry about the future. What comes, will come, and there's no changing it.

Promise me though, that you WILL take time for yourself. Okay?!

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown


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06/30/2008 17:07
bj01
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I just joined the MDjunction website and saw your post. Believe me, I know what you're going through. My husband has been on disability for fibromyalgia and major depression for the last year. He can't drive most days so I'm his driver wherever he needs to go. Besides being the driver, I also have to keep his spirits up. The depression certainly works against that. I work too and have three kids at home in the summer (one goes off to college in the fall). Luckily my work is where I can mostly set my own schedule. I'm not sure how I'd manage otherwise.

Just wanted to let you know you're not alone. I'm there with you!

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06/30/2008 17:25
broken
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for better or worse sickness and health,
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06/30/2008 17:55
jessicaharris9
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I can second fibroforever; my hubby works from home (he never gets a break from us), we have two kids, I constantly have treatments and doctor appointments. One day he asked me if he was a bad husband for not going along; I told him he'd never be at work. He went to all the diagnosis doctor visits; we then had family/friends/church congregation members take me to other treatments so Kevin could work. I told him I'd let him know when the important doctor appointments are that he needs to be at; otherwise I can do it on my own. This is the rest of my life; and he can't provide for us if he gives up his to hold my hand all the time.

Hubby and I had a fight about a week ago because he kept canceling "outings" with his friends because I didn't feel well. I told him to go out; but he knew he needed to be home to take care of the kids. In the meantime he was burned out and resenting me, not that he was "mad at me" for being sick just that he really needed time for him, he deserved time for him. I was feeling well enough that he went golfing yesterday; he was in much better spirits! Much more able to give me the support I needed.

When you have an acute ailment it's scary and you want someone there all the time. When it's chronic; you can't expect someone to be there constantly; its just too much! You need a team, they need to rotate; and they will get burned out! It becomes normal, and you get use to just doing stuff on your own.

Make sure you take time for yourself; you can't take care of hubby if you don't take care of yourself. You also need to take care of your relationship as well. So try to make a fun date night (once a month) that you guys do something fun that isn't about not feeling good.

Good luck, come and vent ask for advice or whatever. Chances are, one of us has been through it and can add some perspective!

hugs

jessi

6/9/06 - biopsy positive for cancer
6/23/06 - DIAGNOSIS: stage IV (T4d N2 M1) invasive ductile carcinoma NOS with bone and liver mets; 17 cm mass (primary tumors), inflammatory breast cancer(IBC); HER2/neu+, HR-
6/26/06-12/11/06 - Chemo FEC/Taxol w/Herceptin & Aredia
12/20/06 - right modified radical mastectomy, 7 of 13 removed nodes showed evidence of prior disease
12/21/06 - No Evidence of Disease (stage IV/NED); complete remission
2/6/07-3/22/07-Radiation 28+5 boost, 6040cGy.
CURRENT: Still NED, taking Herceptin and Zometa without end. Heart and kidney function remains normal.
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06/30/2008 18:25
broken
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I know I get sick of myself I keep trying to run away but I always catch up

imagin how our other half feels alot of times their fustration is that we can't be fixed ..I recently had to have test done on my thyroid(lump)when I first told my husband he seemed to not care and it hurt me till when he thought I was asleep and he would feel my throat it went on for weeks I didn't say anything to him ,he stopped doing this night checking when the all clear came in he still checks just not as often.I love him so



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07/01/2008 05:43
Brett93
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bj01...your husband is real fortunate because i didn't have that kind of support...keep up the good work..he needs it...i just hope he shows you the appreciation you deserve

Popular posts by Brett93
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07/01/2008 10:36
bj01
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He really does appreciate everything I do for him. We're in it together.
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