I'm new to the website, and figured I should start with an introduction and brief history, so here goes.
I am a 25yr old woman in Utah, and have been suffering from chronic pelvic pain for ~6 years. I have been married to the man of my dreams for nearly 5 years, and we recently adopted 2 beautiful kittens.
This history: I honestly don't remember when the pain started, and the more doctors I see the more I remember incidents earlier in life. The turning point in realizing I had a problem was around 5 years ago, as my first marriage was ending. I experienced a couple of nights of agony centered around my right ovary, and my dr scheduled an ultrasound. My husband was emotionally abusive and inattentive, so I ended up in radiology with my best friend (my current husband). The ultrasound shows evidence of a recently ruptured cyst, and I was told to keep an eye on it and that it would likely happen again. Well, life got crazy, I got divorced, remarried, and my husband and I struggled over the next 4 years with lost jobs and major debt from both our divorces.
I managed to make some time for myself, and changed birth control methods, to Depo Provera, to stop my body from menstruating and causing the cysts. The typical cycle for Depo is a shot every 12 weeks. My husband (DH) and I noticed that I would be in agony, similar to the pain where I ended up with the ultrasound, 1-2 weeks before I was due for my next shot. They were able to increase my cycle to every 10 weeks. This worked for around 3 cycles, and then the pain returned, around 2 weeks before I was due for the next shot. They couldn't increase the frequency any more, so I dealt with this for 3 years. It wasn't so bad, taking a couple of days off work every 10 weeks when the pain was so bad I couldn't get out of bed, but it wasn't what I wanted to be doing.
Finally, this February I decided it was time to really buckle down and do something about this. I changed birth control methods again, Implanon, an implant in my arm with a time delayed release of the same hormone (progesterone) in the Depo Provera. We did this because, my doctor agreed, the pain really seemed to be associated with the hormone cycles my body was going through with the Depo. We assumed a more constant dose would help. Boy, were we wrong. Not only did the pain return, but it was now constant. We tired adding a higher dose of progesterone, no pain relief and it made me crazy (my DH would say crazier).
I'll sum up a little better from here on 
Since February I have seen 3 specialists (2 GYN and a Pelvic Pain specialist), had another Ultrasound, a CT, an MRI, a pelvic laporascope, and a pelvic venogram. Some of these tests were bordering on torture. All looking for the "normal" causes of pelvic pain. I do not have unusual cysts, I do not have endometriosis, andometriosis, or even varicose veins. I've seen 2 physical therapists, and my chiropractor. I've missed more than 2 days/month of work because of the pain, and I still don't have an answer. My doctors have even said I'm a mystery.
The venogram was on Tuesday, and was the Pelvic Pain specialists "last idea" before assuming it is neuropathic, and he'll probably want to put me on drugs for the rest of my life because I'm just "oversensitive to pain". I've been on Lortab 7.5 since April, just to get through the day sometimes. I hate taking it, I hate feeling all drugged up, and I don't take it unless the pain is so bad I can't function. With the venogram showing nothing, I'm starting to slide into depression, until now I've had some hope that the specialist would find a diagnosis for me, but now I just feel lost. DH is wonderful, caring, and the most patient man I have ever known. His (single)mom had Chronic Fatigue that went undiagnosed for most of his childhood; he understands how draining and painful this is.
I think I'm just wondering if there is anyone else out there who has had even a slightly similar experience? I just need some hope right now.
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