Chronic Pain Support Group

Guess, that's not going to happen; so, I'm struggling to find my "New Normal". It's been a long process, but as of the last couple of years, my diagnoses have been (on top of Chronic Migraine Disease) Eosinophilic Esophagitis, Chronic Pancreatitis, and Addison's Disease. Oh, I already was diagnosed with Fibromyalgia, too. I've had to give up my career as a Dental Hygienist . something I've fought against for 6 yrs; but I became too ill and was let go from my last job. I'm waiting to hear from my attorney on a hearing date set by SS for disability at this point. I'm to see a new group of Dr's i n palliative pain care, who are a branch of hospice, but for living/long term chronic pain sufferers. I'm hopeful after my in hospital consult with these Dr's. I really liked them and they seem to be really compassionate, yet truly interested in treating the "whole" me. I see them next week. They tweaked my pain patch and some of my other meds while in the hospital last week and I think I can already tell a difference to the good. I'm ready for it! Will keep you posted as to what happens ...

Thanks for listening.

Post edited by: cnspotsRDH, at: 07/30/2010 11:42 PM

Hi

I'm sorry to hear what a challange your life has become. I think the pallative pain group sounds like a blessing from God. I read many posts where people don't even have descent primary Dr.'s available.

I know what you mean about wishing for the old life. As misserable as I am now, I know someday I'll look at this as the "good old days" wishing I were back here.

My conditions are chronic and progressive. I can't let myself think of the future.

Good Luck with the new group of Dr's I pray they help bring you far less pain in your life. Yes please do keep us posted.

Kardie

Update on Palliative Care Group : WOW! Awesome group of people. Thanks Kardie & Ginag. Very compassionate, gentle, Drs & supporting staff. I see the pain psychologist Monday. The doctor even complimented me on my new hair cut! How many usually care enough to notice? He also worked on my neck & back, some. Which was greatly needed & appreciated. He does craniosacral work, too, which helps my Migraines. A wonderful experience thus far! My former internist who is now my hospitalist usually when I get admitted, asked me to give them a try & as usual, he's never steered me wrong. In fact, he's help reroute me a couple of times when I was spinning my wheels with a couple of Drs that I'd been established with prior to my relationship with him. I miss him & have yet to replace him yet, though he gave me a name of another internist he went to Med school with & was in the top of his class along with my former Dr.

I've had sooo many changes the past year ... my internist left the practice to become a hospitalist, as did two of my endocrinologists back to back, then my wonderful Migraine Specialist. I've replaced my EndoC … one down, two to go! I wish all of you could have Dr's & supporting staff like the Palliative Care Group. It would be even better if we didn't need them at all!