Chronic Pain Support Group

Hi, I see many people on here that I already know. I've been posting mainly at the Fibromyalgia and Keratoconus groups...slowly working my way into the other groups for the other issues I have. I don't know if I will join them all, that would put me in about 30-40 groups. That's a lot.

My life changing moment happened just over a year ago. We had an auto accident. (Lady ran a red light and hit us) Since then my life has taken so many turns. I would scream and cry from the pain I was having. After 6 months of the most excrutiating pain, and no meds for it, I convinced them to do exrays and ultrasounds. Come to find out the worst of my pain at that time was coming from gallstones that got lodged in the duct from the impact in the accident. They explained to me that everyone has gallstones, everyone. And that they can live fine and never have any trouble or anything. Some people get affected by it and need action taken. They sent me to a surgeon 2 hours away and when he looked at the ultrasound and exray, and touched the inflamed area schedule me to have surgery first thing the following morning. After that, I was great, no more pain there. But that doesn't mean no pain anywhere.

It's been a hard battle with all of this. For the longest time they kept doing test after test. Some of the MRI's they repeated 2 and 3 times, they did a full body scan, and everything kept coming back clear. The neurologist did 2 tests (carpal tunnel and pinched nerve in the neck) and said I have no problems, I'm ok, nothing wrong, it's all psycho-sematic. I only THINK I have pain. Well, with 8 Docs telling you and your hubby it's all in your head, after awhile, your hubby, who of course can't FEEL it, is starting to believe the medical Docs. I did my research online, etc and began asking LOTS more questions. Asking why they have me now on this or that and that I was researching and what I learned was that this medicine is prescribed for this and this and this....what are you having me take it for? That was the only way I dinally got my diagnoses.

We went for 10 months knowing nothing and being told nothing is wrong, it's all in my head, to being told 3 or 4 or 5 more things wrong with every visit. Now I have tons of conditions, and my Doc refused to continue my pain meds and muscle meds about 3-4 weeks ago. So I've called back over to the pain clinic to see if they will refill them.

There is my story, feel free to ask anything. I'm happy to meet everyone and hope to find some help and answers.

Beware though, I am a joking one. I say thing so that you will know my posts are generally of a light humor.

Gentle Hugs to all

It sounds like you have been through so much. I am glad to see you have kept your sense of humour. I also have this huge list of stuff that is wrong with me. It makes you hurt to think of it all sometimes. I hope you have a good team of docs as well as a good support system because that's very important. If you don't,realise you have us. Welcome to our little group,feel free to ask questions or just vent.Take care of yourself....Are you able to still work? It sounds like with all your pain that would be almost impossible,but i'll ask anyway.I hope your husband is supportive,that is more important than you can ever realise.

Welcome to the group Pam. I love the fact that you like to joke. Humor is a wonderful tool. You have a big history here (most of us do). My name is Dr Patty and I am very glad that you found us. Wow, you joined 40 groups?

Oh heavens no Dr Patty. I just have more than that many conditions from the auto accident. Gosh, if I was in that many groups I'd go crazy! LOL

Thank you KYChick, are you the same kychick in the Fibro groups? No, I'm not able to work. Applied for my SSD and have been denied, they told me I could work selling Real Estate. About 2 weeks after that laugh was when I had the fall where my arms lost function as I was getting out of bed and I cracked 5 ribs in 2 places. I never know when they will lose function. Plus I can't walk, stand or sit long. Going from the Corporate world to not being able to remember 15 minutes after you took your meds whether you took them or not just wouldn't cut it in my line of work. LOL

Dr Patty, what kind of Doc are you? Do you still practice? It is so comforting to know there are Dr's and nurses here. Nice to meet you.

Same kychick...Don't give up on the SSD!! I was turned down twice,got a lawyer and filed an appeal,I just got word from my lawyer,that they need my doctor to fill out some forms and send my latest records and they may go on and approve it without a hearing. You have enough conditions that you should get it,keep up the fight!!

A familiar face. (I'm at the Fibro group too.) I'm glad you're with us here at the Chronic Pain Support Group. This too is a good group.

You have been through so much. Sorry that it took so long to get to the bottom things. I do hope that your husband is understanding now. Those doctors were the ones that had it all their heads.

Do hang in there with SSD. I had a representative group supporting me. But now that we're down to the hearing level, I've gotten an attorney. I'm just like the rest...trying to patiently wait until it's my turn.

Take care!

Amy

Welcome. I know how funny you can be. You make everyone smile.

Thank you all so much.

Angel, I have to have something to do (that I CAN do...so that's my humor! Takes little movement and doesn't cause pain! )

I am happy to be over here. Haven't been able to get on the forum for a couple days, kept telling me it was down for maintenance. After this many tries, different times of the day/night, I was about to decide that it was down rebuilding all of US new bodies, but....alas, I find out it wasn't. Darn! Was a nice thought tho. I'd have ordered my new one to be taller though besides pain free. I don't really like this after losing 3" from the accident, now my nose is up to my hubbys belly button, but hey...I can blow any lint of out his belly button now!!

Have a lovely evening...uh...10:32 p.m.....Have a lovely night and some good sleep.