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skittle0407 Posts: 613
Senior Member
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Sorry everyone for being vacant lately.......having a tough time this week. Hopefully will be up to posting and catching up with all of you great, wonderful supporters!!!! It is not easy for me to admit I feel lost and disconnected from life. The pain just seems to have a hold of the mind, body and soul. Hoping and praying the nerve root block on Friday helps some and I can come back full of positive enthusiasm.......wishing you all less painful days and nights.  With Blessings and Friendship,
Denise
By Remez Sasson
"Success in various forms and degrees,
whether in material matters, self improvement or spiritual growth,
is within reach of every one of us,
provided we earnestly desire it, do our best to get it,
and do not give up on the way."
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bits Posts: 10399
VIP Member
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I so hope you getto feeling better. And I am praying all goes well Friday. Hugs When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and I could say, "I used everything you gave me." ~ Erma Bombeck
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fluffyluggage Posts: 4723
VIP Member
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Oh, Skittle, I'm sorry you are feeling so badly. I know how it feels not to be able to feel like you can reach out. It's in a way humbling, because you feel like you need to be strong, especially as a leader. But we don't see you like that, you're very much a loved part of this community, who just happens to be a leader, too. I hope you get to feeling better really soon, and just take the time you need to recover and come back to us feeling healthier. But don't forget we're also here to support you just as you are to support us! Good luck for the nerve block. I hope it helps to give you some relief. I'm sure it can't come soon enough. Love you, Jen Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.
Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version) |
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mitzigirl Posts: 11722
VIP Member
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Denise, My dear sister I know how hard it is for you to come to others and tell how you feel..This is so good that you have let everyone know. Hun they all care for you too including me.. I pray this works for you too..You know you are always in my thoughts and prayers and I too hun know what it feels like to feel disconnected and lost have been there many times with all the pain and health issues..As I am sitting here writing to you the song just came on Jesus Take The Wheel..Hun you know there is nothing you can do except to let Jesus take the wheel You have to you cannot do this on you own..I found out many years ago in order to survive this you have to step back and let him take the wheel when there is nothing else you can do.. I am praying for God to watch over you today and to let this block help and let you get the relief you so desperatley need..Dont Give Up just came on so you dont give up..You are understood just know this...Me and You share a special bond and You Are Loved.. Hugs and Blessings,
Viv
Live everyday as if it might be your last.
Let go and Let God!!!
Be Kind and Compassionate to others.
Understand life can be hard but you can survive it!
Good Friends make all the difference in the World.
Even though I am a leader of depression, OCD and MRSA I am just like the rest of you..I have the problems. I have no medical training. |
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fibroforever Posts: 3663
Group Leader
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Hang in there Denise. You are strong! You are a Survivor! Just keep telling yourself that. I too hope that your Friday's visit goes well. May the nerve root block work. I'm sending lots of gentle hugs your way. HUG, Hug, HUG "When you feel like giving up, remember why you held on for so long in the first place." ~Unknown |
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bits Posts: 10399
VIP Member
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How is it going denise? I so hope well. Hugs When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and I could say, "I used everything you gave me." ~ Erma Bombeck
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skittle0407 Posts: 613
Senior Member
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I wish I could say all is well, but right now it is not. I am experiencing some bad side effects from the increase of medication and so far the 2 injections I got have not relieved the pain, only added to it. But, I still have hope that it will get better in the next few days. Thanks so much everyone for caring, it was nice to see so much encouragement from all of you......I truly needed it With Blessings and Friendship,
Denise
By Remez Sasson
"Success in various forms and degrees,
whether in material matters, self improvement or spiritual growth,
is within reach of every one of us,
provided we earnestly desire it, do our best to get it,
and do not give up on the way." |
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bits Posts: 10399
VIP Member
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denise, did docs tell you when you should feel relief? I am still hoping it will come and you will say..Aaaahhhh. I continue to pray for you friend. Gentle Hugs When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and I could say, "I used everything you gave me." ~ Erma Bombeck
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skittle0407 Posts: 613
Senior Member
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An update for everyone, thanks everyone for being so kind and caring. I felt some relief this morning, meaning I can move my right arm a lot better then before. Unfortuneately, they also had to reduce my neurontin because I had severe neurological difficulties again. So, now the shooting, burning nerve pain is back in full force  But hey, I am optimistic the NP said she has another option to offer at my next appt. on April 24th. So, I wait and see. I also see the surgeon again Thursday for my EMG results and see what my options are there. I refuse to let all this take me down, I plan on enjoying my birthday tomorrow no matter what!!!! I will try to start posting more as I am able, but truly do not want to push myself too much just yet. Hope you all are surviving the awful weather changes, I know they are adding to my pain. Hang in there, we can do it!!!  With Blessings and Friendship,
Denise
By Remez Sasson
"Success in various forms and degrees,
whether in material matters, self improvement or spiritual growth,
is within reach of every one of us,
provided we earnestly desire it, do our best to get it,
and do not give up on the way." |
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bits Posts: 10399
VIP Member
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denise, I am glad for some improvement but sad for the burning pain. You have a great attitude and I know you are truely suffering. God bless you dear. Hugs When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and I could say, "I used everything you gave me." ~ Erma Bombeck
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