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Chronic Pain ForumsGeneral & SupportTARLOV CYST DISEASE
05/31/2011 07:54 AM
tammyb2
tammyb2
 
Posts: 146
Member

Hi Everyone,

Just wanted to let you all know that I have found a Doctor to look at my back, found out that i have tarlov cyst (2 of them ) I go June 20th and then we will schedule surgery. Maybe in September. This is a really rare disease and not alot of doctors treat them. I still have chronic pain all the time and i am still sleeping alot. Not much energy but wish i could get on here more. Hope all is well with everyone!!!!!

Tammy

Live, Laugh, Love it's all we got from here!!! I AM NOT A DOCTOR ALL I HAVE IS PERSONAL ADVISE!!
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05/31/2011 06:58 PM  Top
sunnydays
sunnydays
 
Posts: 638
Member

Tarlov cysts are called perineural cysts I do beleive,and I have one also,on my lumbar. No one had ever mentioned it to me before,until I recently went to the chiropractor. I brought my most recent MRI with me,and he brought the cyst to my attention. On the MRI they call it a perineural cyst,but I looked it up on webmd,and found out they are called tarlov cysts,usually filled with spinal fluid. I havent spoken to my DR. about it yet,but I am planning on it. Good luck with the surgery,I hope they can alleviate your pain.

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