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kanghi416 Posts: 11
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I'm John and I was diagnosed with FMS/CFIDS/MPS in 2001. I was never one with abundant energy but now dealing with this constant "low level" feeling is rough. To add insult to injury, my wife seems to have come down with the same complaint. I do my best to mange and find Malic Acid and Resveritol helpful. I also take Lyrica for the pain and it helps some. Adding a low dose of Cymbalta has improved things a bit pain wise, but Cymbalta makes me feel foggy sometimes. It is bad enough that I have to deal with the dreaded "Fibro Fog", but to add this to it....Sheesh. Has anyone noticed memory and cognitive problems? Love, Peace, and Hope,
John
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Lazy1 Posts: 2736
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Welcome to the group. I could not take Lyrica or Cymbalta. But, I do notice the fibro fog, fatigue, and memory loss and they are annoying and frustrating. |
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kanghi416 Posts: 11
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They are indeed. My wife has a problem taking antidepressants. They make her psychotic. Love, Peace, and Hope,
John |
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fluffyluggage Posts: 4723
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Hey Kanghi! Welcome to the group. It's very difficult to deal with all our symptoms, and then adding to it, seeing what medications complicate the original symptoms you're already suffering, you wonder where you go, right? I know how you feel. I have Lyme disease, which is actually the precursor to everything else, the FMS and CFS, and probably most of my other conditions. But, what I've fortunately found is that by taking the medications that are helping treat the Lyme and its associated symptoms, fortunately, I am seeing a great amount of improvement in my symptoms. I am on Cymbalta, and while I feel some sleepiness from it, I simply take it at night, and it helps my insomnia. Before treating the Lyme, tho, I was having all sorts of massive issues. I'm sorry to hear about your wife and her problems with anti-depressants. Has she looked into the possibility of having bi-polar disorder? Sometimes that symptom along, going psychotic on an anti-depressant, can be a major symptom. Just a thought... If you aren't taking Cymbalta at night, I'd really encourage you to do so, even if your doctor said to take it in the morning. Mine said to take it in the morning UNLESS it made me too groggy, which it did, in which case, she said take it in the evening instead. *hugs* and welcome again. Let me know if there's anything I can do to help you out! Jen  Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.
Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version) |
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kanghi416 Posts: 11
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Hi Jen, Thanks for the warm welcome and the good advice. I doubt my doc will do anything like treat me for Lyme Disease, since I have no evidence of a tic bite. As for the Cymbalta, I take 20 at morning and 20 at night. It seems to be OK. But if I need 60 I take the one 60 mg at night. It does help with sleep...It sure does. Love, Peace, and Hope,
John |
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fluffyluggage Posts: 4723
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Ya know, if you're interested, I could get you some info on Lyme disease. Just send me a PM or reply here. Even if you don't have evidence of a tick bite, unfortunately, you could still be harboring Lyme, and it's important to know for sure. But, you'd also need to see a Lyme-Literate MD, or what we call an LLMD. A regular doc isn't going to help you, and probably won't be able to recognize symptoms, even if they are about to bite them in the face! No pushing from me, but if you want it let me know. It took me anywhere from 15-30 years to find out I had it, and it's taken me over 8 months to feel better at this point, and I still have a long way to go to remission. I'd hate for that to happen to anyone else, so the offer's there. *hugs* jen Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.
Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version) |
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kanghi416 Posts: 11
Member
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Yeah Jen, please do send me some info. Use kanghi416@yahoo.com that is the email account I use the most. I would love to learn more about Lyme even if it doesn't apply to me. Love, Peace, and Hope,
John |
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fluffyluggage Posts: 4723
VIP Member
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OK, I'll send you some links hopefully later this afternoon (my computer's running really slow--we have dial-up, but it's even slower than normal! LOL). If not this afternoon, I'll have it for you this weekend. I was sick yesterday, trying to fight off a cold, so hopefully it won't turn into anything worse, like a sinus infection or bronchitis! I'm so prone to bronchitis, I have to be a big baby when I get the sniffles or anything!  *hugs* Jen Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.
Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version) |
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