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Chronic Fatigue Syndrome Support Group
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CFS ForumsGeneral & SupportOnly want to join 1 CFS support group
05/07/2008 10:38 AM
HandmadeByAnnabelle
HandmadeByAnnabellePosts: 2
Member

Hi everyone,

I have CFS (obviously) and would like to find a support group online.

But, I only want to join 1.

What do you think of this group and how helpful has it been for you?

Thank you so much!

Annabelle

Reply

05/07/2008 11:26 AM  Top
abetterday
abetterday  
Posts: 230
Member

#1 online! Can't go wrong! The people here are very encouraging and helpful.
Opinions given are based on personal experience. I am not a medical professional of any kind.
--------------------------------------------------------------------------------------------------------------
My medical issues include:RSD/CRPS, Tarsal Tunnel, Carpal Tunnel, Costrocondritis, Fibromyalgia, Primary Infertility, Spinal Stenosis, PTSD and Panic/Anxiety Disorder, Drug-Induced Weight Gain, VasoVagal Syncope, Sciatica, Bulged Disk in my Neck, Allergies, Hypoglycemia, Achilles Tendinopathty, Hypermobility. I had mono twice as a teenager.

Treatments I've Used:3 surgeries, boot cast, custom orthotics and braces, epsom salts, lumbar nerve blocks, epidurals, tibial nerve blocks, tens unit, physical therapy for years, trigger point injections, hydrotherapy, lidocaine patches, steroid shots, prescription pain creams, homeopathic remedies.

Medications I've Used:Celebrex, Flexeril, Lyrica, Savella, Ultram, Lortab, Percocet, Paxil, Wellbutrin, Cymbalta, Topamax, Mobic, Prednisone, Naproxin, Demoral.

* I use a cane, walker and wheelchair depending on the situation.

~~~~ The human spirit is stronger than anything that can happen to it. ~~~~ (C.C.Scott)

Previous discussions I participated in:
why cant just do it
Legs jumping/julting
Muscle cramps

12/07/2008 07:43 PM  Top
Mkwhite613
Mkwhite613  
Posts: 9
New Member

I've noticed a lot of other people getting support but honestly I'm not on here. I enjoy reading what other people are going through but I haven't talked to anyone much.

12/09/2008 07:44 AM  Top
Starr
Starr  
Posts: 3358
Senior Member

Why not, MK?

12/10/2008 09:26 PM  Top
Mkwhite613
Mkwhite613  
Posts: 9
New Member

Honestly I have no idea why. Everyone seems so nice! I'm just going to chalk it up to the fact I need to get on her more!

12/10/2008 10:23 PM  Top
Starr
Starr  
Posts: 3358
Senior Member

Agreed, MK...we don't bite Wink

Annabelle...MDJunction is the best place on the net for any type of support group. We're glad you've found us and hope you make yourself at home here. Smile


12/11/2008 10:19 AM  Top
ShirleyP
ShirleyPPosts: 250
Member

Hello Annabelle,

I just found this site a couple of weeks ago. I have had CFIDS since 1993 with just one person to talk to. I'm still not sure how I found this site, but am truely glad I did. I feel I'm not alone in what I'm going through.I also have checked out other sites like fibro and lymphedema.There are so many people out here, like me, that just want a hello. Yes,we need to be seen and if not seen, at least heard. We are not alone.

Shirleyp

Post edited by: ShirleyP, at: 12/11/2008 10:20


12/12/2008 08:06 AM  Top
Starr
Starr  
Posts: 3358
Senior Member

Hey Shirley, remind me please. What is CFIDS?

12/12/2008 11:45 PM  Top
ShirleyP
ShirleyPPosts: 250
Member

Hi Starr,

I thought I had answered you, yet, I see no post.

CFIDS is Chronic Fatigue Immune Dysfunction Symdrome. I think the name has changed, I know there has been talk about a change. What ever the name is today, it's still the PITS!

Shirley

Post edited by: ShirleyP, at: 12/12/2008 23:58

Post edited by: ShirleyP, at: 12/13/2008 00:58


12/13/2008 06:36 AM  Top
Starr
Starr  
Posts: 3358
Senior Member

Okay...now can you tell me the difference between CFIDS and CFS?
Reply

Health Topics: Chalk, Chronic
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