I hope the online groups can help & give you some peace of mind and support. It would be wonderful if you & your husband could eventually attend some in-person groups too. Seeing & talking with real live people who don't live too far away, who you can reach by phone in times of need, all of that is of immeasurable help and reassurance.
Check out the CFIDS Association of America website for more info & research, as well as possibly a list of local support groups. [I haven't looked in quite a while to see if they still maintain those lists.] They are our top lobbying group & one of maybe three national organizations for CFS.
My best friend in Chicago has had CFS since before her three kids were born & they all turned out fine. They admire her, recognize that she does as much as she can possibly manage, & understand that mom has some days when she's really sick, but that's OK.
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