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CEBV Symptoms taken from CEBV.ORG



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05/06/2008 04:36
kgirl04
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One of the reasons, if not the main reason why CEBV is so difficult to diagnose and why it is often misdiagnosed is due to the vast differences in symptoms. Symptoms often differ from person to person. Where one sufferer may only experience fatigue, another may experience a variety of symptoms of varying intensity. Some unfortunate victims have been mislabeled with bipolar disorder, major depressive disorder, and even hypochondria. The symptoms listed below are in no way related exclusively to CEBV. In fact, you may simply have another condition. The symptoms are simply meant to assess the POSSIBILITY of being infected, as only a blood test can accurately gauge if this is the case. What we have listed below are those symptoms typical to an individual suffering from CEBV. If you yourself have the disease, but have symptoms not listed below, please contact us to let us know. Symptoms are listed in alphabetical order and in no way entail any suggestion of importance. Where found necessary, some of the symptoms have been commented on due to the fact that they often have certain features specific to the disease. Please note that different conditions caused by CEBV have different symptoms that go along with them, such as depression, so assume that even though it is caused by the virus, the symptoms normally found as they appear in individuals who are not infected are generally the same.

* Aggression (Usually very mild)

+ Alice in Wonderland Syndrome

+ Allergies (Heightened, or previously nonexistent)

+ Anxiety (Mild to Severe)

+ “Brain Fog” (Feels as though thoughts are dulled)

+ Brain “Surges” (Similar to a headache, feels like a “shock”)

+ Burning or Tingling Extremities (Mild to Severe)

+ Burning Tongue (Usually very mild)

+ Cold Sweats

+ Confusion (Well-known objects seem alien, etc.)

+ Decreased Alertness

+ Decreased Libido

+ Decreased Motor Skills (Usually very mild)

+ Decreased or Low Stress Tolerance

+ Depersonalization

+ Depression (sometimes cognitive, controlled)

+ Derealization

+ Difficulty Concentrating (Reading, writing, speaking, etc.)

+ Difficulty Reasoning (Mathematics, decision making, etc.)

+ Difficulty Urinating (Dribbling, bladder problems)

+ Discomfort After Sexual Activity (Usually a sore sensation)

+ Discomfort After Urinating (Feels similar to a UTI)

+ Dry Cough (Very rarely with discharge)

+ Earaches (Mild to Severe)

+ Excessive Worry

+ Fatigue (Usually very severe)

+ Fever (Usually mild, fluctuates from low to high)

+ Food Sensitivities (Heightened, or previously nonexistent)

+ Headaches (Mild to Severe)

+ Hostility (Usually very mild, only in thought, not action)

+ Hypersomnia

+ Impulsive Feelings (Normally never acted upon, causes anxiety)

+ Increased Nasal Buildup

+ Increased Nasal Discharge

+ Insomnia

+ Irritability

+ Irrational Thoughts (Fear of “going crazy,” etc.)

+ Leukoplakia (Usually mild)

+ Loss of Interest in Activities (Hobbies, sex, friends, etc.)

+ Malaise (Feeling that “something is wrong,” “I’m ill,” etc.)

+ Mental Symptoms alleviated by eating or drinking

+ Migraines

+ Mild Delusions (grandeur, religious, etc.)

+ Mood Swings (Mild to Severe)

+ Mouth Sores (Mild to Severe, sometimes triggered by food)

+ Night Sweats

+ Obsessive Compulsive Disorder (similar symptoms, usually mild)

+ Obsessive Thinking (Focusing more than usual on fears, etc.)

+ Paranoia (Usually mild)

+ Persistent High Fever (Sometimes as high as 102F)

+ Ringing in the Ears (Mild to Severe)

+ Sensitivity to Light (Especially bright light)

+ Shingles (Mild to Severe)

+ Sinus Problems (nonexistent or unusually heightened)

+ Skin Rashes (Mild to Severe, varying types)

+ Sore Joints (Mild to Severe, normally short duration)

+ Sore Muscles (Mild to Severe, sometimes restricting movement)

+ Sore Throat (Normally mild, may be severe, can last for days)

+ Swollen Lymph Nodes (Armpits, Neck, and/or Groin)

+ Swollen Spleen (Can rupture, but this is very rare)

+ Tremors (Mild to Severe, often intermittent)

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05/06/2008 09:53
moonlight14
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I also found that wonderful list of symptoms and I have alot of them.
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05/06/2008 10:17
moonlight14
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ok I checked off what symptoms I have on this list.

Y Aggression (Usually very mild)

N Alice in Wonderland Syndrome

N Allergies (Heightened, or previously nonexistent)

Y Anxiety (Mild to Severe)

Y “Brain Fog” (Feels as though thoughts are dulled)

Y Brain “Surges” (Similar to a headache, feels like a “shock”)

Y Burning or Tingling Extremities (Mild to Severe)

N Burning Tongue (Usually very mild)

Y Cold Sweats

N Confusion (Well-known objects seem alien, etc.)

N Decreased Alertness

Y Decreased Libido

N Decreased Motor Skills (Usually very mild)

Y Decreased or Low Stress Tolerance

N Depersonalization

Y Depression (sometimes cognitive, controlled)

N Derealization

Y Difficulty Concentrating (Reading, writing, speaking, etc.)

Y Difficulty Reasoning (Mathematics, decision making, etc.)

N Difficulty Urinating (Dribbling, bladder problems)

Y Discomfort After Sexual Activity (Usually a sore sensation)

N Discomfort After Urinating (Feels similar to a UTI)

Y Dry Cough (Very rarely with discharge)

Y Earaches (Mild to Severe)

Y Excessive Worry

Y Fatigue (Usually very severe)

N Fever (Usually mild, fluctuates from low to high)

N Food Sensitivities (Heightened, or previously nonexistent)

Y Headaches (Mild to Severe)

Y Hostility (Usually very mild, only in thought, not action)

N Hypersomnia

Y Impulsive Feelings (Normally never acted upon, causes anxiety)

Y Increased Nasal Buildup

Y Increased Nasal Discharge

Y Insomnia

Y Irritability

Y Irrational Thoughts (Fear of “going crazy,” etc.)

N Leukoplakia (Usually mild)

Y Loss of Interest in Activities (Hobbies, sex, friends, etc.)

N Malaise (Feeling that “something is wrong,” “I’m ill,” etc.)

N Mental Symptoms alleviated by eating or drinking

Y Migraines

N Mild Delusions (grandeur, religious, etc.)

Y Mood Swings (Mild to Severe)

Y Mouth Sores (Mild to Severe, sometimes triggered by food)

Y Night Sweats

Y Obsessive Compulsive Disorder (similar symptoms, usually mild)

N Obsessive Thinking (Focusing more than usual on fears, etc.)

Y Paranoia (Usually mild)

N Persistent High Fever (Sometimes as high as 102F)

Y Ringing in the Ears (Mild to Severe)

Y Sensitivity to Light (Especially bright light)

N Shingles (Mild to Severe)

Y Sinus Problems (nonexistent or unusually heightened)

Y Skin Rashes (Mild to Severe, varying types)

Y Sore Joints (Mild to Severe, normally short duration)

Y Sore Muscles (Mild to Severe, sometimes restricting movement)

Y Sore Throat (Normally mild, may be severe, can last for days)

Y Swollen Lymph Nodes (Armpits, Neck, and/or Groin)

? Swollen Spleen (Can rupture, but this is very rare)

Y Tremors (Mild to Severe, often intermittent)

Also get bad pain in my Chin bones(Spelling), Collar bones, burning tight feeling in neck & shoulders, feel like I have fever, pain in my hip bones & burning feeling in my upper outter thighs. I most likely forgot something.



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05/08/2008 19:31
FibroAngel
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I can relate to many of the symptoms but what I am trying to figure out is if I actually had CEBV back in 1995 when I was diagnosed with CFS because back then, the name Chronic Epstein Barr Virus was used interchangeably with CFS...I got diagnosed with CEBV almost two years ago...I feel a lot worse than I did back then...so much so, that I can't work anymore!
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05/09/2008 05:02
kgirl04
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Did you have blood work way back when? If not, there is no way to tell. Most doctor's are not familiar with EBV or CEBV, thye dx you with something else. I was mis diagnosed with Fibro for approx 3 years, before finally dx;d correctly with CEBV.
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05/09/2008 05:11
FibroAngel
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I had bloodwork way back and was told I had all but one of the major markers for CEBV and again in 2006 when I was told I had mono and before I could recover from it, I got it again, therefore and that is when I was told I had CEBV! Doc went on to say that since most of my colds always lasted for much longer than they should have and that they always knocked me out more than they should have, it is quite possible that some of those colds were actual bouts of mono...

Interesting you say that you were misdiagnosed with Fibro...there is so much overlap between both conditions, all I know is I am in more pain than I ever was and more exhausted than I ever was, that I can't help but wonder if what I was told was Fibro in '97, was really CEBV!

I was in a serious head on collision coming up on 20 years on October 28th of this year and all I can tell you is that I have never been the same...

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05/09/2008 05:25
moonlight14
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I was in a serious head on collision coming up on 20 years on October 28th of this year and all I can tell you is that I have never been the same...

My DR told me that she thinks my surgery back in October made this come out of hiding. I have felt sick for about 3yrs but it is the worse now. I remember in the begining of that month I had got really sick & couldn't get air. They gave me abuterol treatment & said that I know have asthma. I did have weezing in my chest once in awhile but just paid no attention. Now I use a inhaler.

Post edited by: moonlight14, at: 05/09/2008 07:26



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