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Chronic Epstein-Barr Support Group
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05/02/2008 05:52
moonlight14
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 I've been doing alot of reading on CEBV, CMV & Chronic Fatigue. The symptoms are almost the same. I'm confused because I don't which one causing me to feel the way I feel.
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05/02/2008 05:57
kgirl04
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 I just found this "There are special laboratory tests to culture the virus but such testing is difficult, expensive and not widely available. Specific blood tests can be helpful to the physician in making a diagnosis or determining if a person has been exposed but the results are sometimes inaccurate." What makes you think you have that? What does your doc say?
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05/02/2008 05:58
kgirl04
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 The post with that quote came from a CMV website...sorry for the confusion.
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05/02/2008 06:05
moonlight14
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 The DR did do blood work & it shows:

CMV Antibodies, IgG 10.00(H) abnormal

She also said I have Chronic Fatige Syndrome
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05/02/2008 07:37
bisja
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 Can you tell me if they have a test for Chronic Fatigue? I have asked my doctor about it and alls he will say is ohhhhh we do not want to think that right now........well.... I have been sick for 20 months now..
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05/02/2008 07:48
kgirl04
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 not that I know of..Chronic Fatigue is used when they have no laboratory findings to base a diagnosis on...However I am not a doctor, that's just what I have learned from reading..Has your doc tested for EBV? Correctly, I mean, since most doctors don't have a clue. I see a Neurologist with a specialty in Immunotherapy..most of his pt's have MS or Lupus. I am VERY lucky to have found this doctor..that's how knew what kind of specific tests to run.

Post edited by: kgirl04, at: 05/02/2008 09:49
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05/02/2008 09:10
moonlight14
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 I don't think there is a test for it. I haven't well for 3yrs & just found out I have all this crap but it is a good question. When I go in to see her I will ask what makes her think I have Chronic Fatigue Syndrome.
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05/02/2008 10:10
kgirl04
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 The doctor has to do an EBV titer test, make sure she includes the nuclear number. My neuro looked at all my other bloodwork from other docs ever since I was first dx'd and not even 1 of them tested that. VERY IMPORTANT. That is why people with EBV can collect disability..there are laboratory findings..high EBV titers.
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05/02/2008 10:20
moonlight14
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 Is that the same as nuclear antigen?
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05/02/2008 10:22
kgirl04
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 LOL..yeah, that's what I meant...
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