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"Essential Tremors" (KJohnson1667)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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05/02/2012 08:08 PM
barelymanic
barelymanic
 
Posts: 3229
Senior Member

Hey Ange2009, been very busy trying to learn how to take great pictures and working on making my products meet FDA regulations. What some are saying how the FDA is interpreting the rules is to me really stretching it. Plus they would have to put so many web business out of business that they better hire at least another 1,000 people.

Any ways, I still suffer from a lot of mental problems, such as irritability and memory issues and often I feel like my brain is stalled but on automatic. Actually thoughts come rushing into my head and out of my mouth but I can't think of what I want to think of.

I am often very exhausted. I did get a cpap and do have supposedly mild sleep apnea, so maybe that will help.

Feel free to PM me anytime. I try to remember to come to various groups but I often only go to the ones I am a GL for.

My main leadership role is to listen, encourage, and keep the peace....It isn't to give medical or legal advice...Please note...I am not a Doctor...nor an expert...I am here for the same reason all of you are...to receive and give encouragement.

My religion is kindness - The Dalai Lama
For small creatures such as we the vastness is bearable only through love. Carl Sagan
Reply

05/03/2012 12:07 PM  Top
ange2009
ange2009
 
Posts: 373
VIP Member

well I am glad you replied,i was wondering about you,I go to many forum,bipolar,because my son is bipolar..depression,as i have to fight it once in a while,..child abuse and shaken babies,as my grandson is now disable because of my own son s shaking.

I was told about MDJ,and it is some work,as sometimes posts are never replied,but i found a nice small group of people and we do help each other I believe.

my commitment is to listen,and may suggest,i am not a spring chick anymore...was a pediatric nurse in my heydays..now retired..I have compassion for people,and definitly think this site is worth being on.

make the best of of the day,Hugs,Jackie.


05/03/2012 04:21 PM  Top
barelymanic
barelymanic
 
Posts: 3229
Senior Member

I know people get upset by this subject but after being abused so badly by two people who obviously had mental issues and a drugged up uncle who tried to suffocate me. I think there should be close scrutiny with people who have mental illnesses and children.
My main leadership role is to listen, encourage, and keep the peace....It isn't to give medical or legal advice...Please note...I am not a Doctor...nor an expert...I am here for the same reason all of you are...to receive and give encouragement.

My religion is kindness - The Dalai Lama
For small creatures such as we the vastness is bearable only through love. Carl Sagan

Previous discussions I participated in:
mark your calendar
sleep makes me unwell
SEVERE ARTHRITIS

05/03/2012 07:01 PM  Top
ange2009
ange2009
 
Posts: 373
VIP Member

mental illness is real,it has to be talked about,no more hiding..abuse is awful..undeserved..it has to stop..what ever we know..we tell. the rest of my life will be a mission to educate people,and stop anyway i can the abuse..i live a sad life,but I live it for my sweet handsome grandson who was abused,i make his life easier,i love him to pieces,and will be his voice..legs..eyes..

hugs.jackie.


05/04/2012 06:22 PM  Top
barelymanic
barelymanic
 
Posts: 3229
Senior Member

For some reason people are real into what ever worked for them should work for everyone else. They do counseling with child sex offenders at the center I go to. This counseling is court ordered I have know the same to happen to other types of abusers. I don't know why people think all they need is counseling, it's a wonder and idealistic idea that it could be that is, but then the victims get to pay with being tortured, injured or even killed.

It's not that the abuse exists, people know that it's on the news often. What the need to be educated about is what the solutions could be, in others words what needs to be done.

My main leadership role is to listen, encourage, and keep the peace....It isn't to give medical or legal advice...Please note...I am not a Doctor...nor an expert...I am here for the same reason all of you are...to receive and give encouragement.

My religion is kindness - The Dalai Lama
For small creatures such as we the vastness is bearable only through love. Carl Sagan

Previous discussions I participated in:
mark your calendar
sleep makes me unwell
SEVERE ARTHRITIS

05/12/2012 04:18 PM  Top
yellowroze
yellowroze
 
Posts: 569
Senior Member

hi everyone sorry i haven't been around for a bit. been having problems with my depression and stuff. my one good thing today is that i talked to my daughter on the phone and i made the decision to move closer to her. she's only 8 and she needs to be with her mama!
Blessed Be, Roze

i am not a dr nor an expert. however i am just a person like yourself just trying to offer support and get support in return.

05/13/2012 07:03 AM  Top
barelymanic
barelymanic
 
Posts: 3229
Senior Member

yellowroze when you have a problem being around, if you could send me a message, I will do back up for you as much as possible.
My main leadership role is to listen, encourage, and keep the peace....It isn't to give medical or legal advice...Please note...I am not a Doctor...nor an expert...I am here for the same reason all of you are...to receive and give encouragement.

My religion is kindness - The Dalai Lama
For small creatures such as we the vastness is bearable only through love. Carl Sagan

Previous discussions I participated in:
mark your calendar
sleep makes me unwell
SEVERE ARTHRITIS
Reply

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