The Charcot-Marie-Tooth Disease Support Group is full of ways to interact and share your knowledge and experience. It's your chance to be around people who are dealing with the same issues as you do and understand you best. The Charcot-Marie-Tooth Disease Support Group has 3 main discussion topics. You can explore them by clicking the link on the left. As this group just started we'll need people to jump start it and make it as productive as other groups on this site are. To get an idea you can visit the Lyme group or the Fibromyalgia one. It's important to keep an open mind to different opinions and points of view, different things work for different people. Remember! This group is all about people helping people and it’s not in any way a replacement for medical diagnosis and treatment. You should wear a ribbon and tell people why, write a diary and most important – hug people. A hug is probably the best cure for anything  And much much more… For more information see our Group Guidelines. Please contact me regarding anything you want We really want this group to blossom. roy first they ignore you
then they laugh at you
then they fight you
then you win.
- Ghandi
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"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)
