Cerebral Palsy Support Group

Hi

I would love for someone to share with me there

experiences .I am a student studing this disability

Melita.

welcome to the group what exactly do you want to know

I am in same position, what is the disease, what are the disabilitys yoou face and any discrimination, anything you would tell someone if they wanted to know what it is like to have the illness

cp is a disability caused by brain damage before,during or shortly after bith in the part of your brain that controls your voluntary mucles(arms ,legs, ) you can't die directly from cp and it doesn't get worse but there is more wear and tear and pressure from tight muscles an ligament in spastic cerebral palsy (tight muscle) athetoids low writhing involuntary movements ataxic effects movement and coordination ,mixed cerebral palsy is two different types diplegia effects top half or lower half of body and then hemiplegia effects right or left side of body I have mild spastic hemiplegic cerebral palsy (tight muscles on my right side only)

to learn more :

http://www.cerebralpalsysource.com/Types_of_CP/index.html

I used that as help with spelling and what each type is I know spastic symtoms the thing is with cp you can be confined to a wheel chair unable to eat or speak or you can be able to walk ,run, talk, its barely noticeable mine is barely noticeable it affects my hand I can use it but when it curled up in a fist with my thumb under my fingers its the most comfortable more relaxed in a way

Post edited by: vickiem1124, at: 01/08/2010 01:54 PM

I am glad yours in barely noticeable, are you treated different if someone knows or notices it. What do you do. answer only if you are comfortable w/ it. Just trying to understand,

I think you are very sweet and funny w/ markm cuz.. I enjoyed our christmas party. You were alot of fun and would like to get to know you better

yes alot of times they can't quite pinpoint whats wrong and that can make them uneasy but my social anxiety plays a part in their uneasiness others decide that I am just plain weird

I get frustrated then my nice and funny self turns into a child I cry stomp yell and bolt out of the room

I am 34 not a good thing but never been able to handle my emotions your drug abuse soften stems from a want to mask those emotion I use food but it only works on worry or nerves not frustration

I used drugs because of social anxiety and it gave me the courage to be a big flirt and to socialize. When I had to stop drinking and druging I sat in my bed for 4 years and went through alot of therapy to get out of bed. That must be funny seeing you stomp and yell out of the room hahahahah just kidding, I know what you mean, just wanted to add in a joke, not to good at it. But don't take things so seriously because how you see yourself, the others never look at you the same way. I look back now and talk to old friends and all the insecrities I felt they felt too. There was this guy that I had this huge crush on (don't tell markm) and I felt so shy by him and now I talked to him several months ago and he felt the same way by me. See we could of hooked up, but we were both too shy. So believe in yourself and try to have more self esteem in who you are. What are you majoring in.

Hey, this is kind of delayed but i just joined the group a few months ago and have been skimming the information slowly. Well I will tell you a little about my expereince. Most of my disctimination issues took place burring my high school years and junior high but most of it was from the end of junior high into high school.

Most people or at least i felt that most people anly really liked me for the big books i used and the full tiem ed tech i had to help with not taking and with some assignments. It used to be so frustrating because they never really took tiem to get to know who i was just what was different about me. i did have a few great friends though and still keep in touch with them today. i really just wish that people would look past teh differences and see what is on the inside a caring loving normal in my eyes any way person any way if i can be of any further assistance feel free to post or PM which ever is easier