Celiac Disease Support Group

I'm being tested for celiac because I have multiple neuro problems and I have lots of pain issues. I've read all the symptoms of celiac and my symptoms don't seem to match I've had your irratible bowel syndrome since I was 14 and I just don't seem to have the reactions and problems that celiac makes!! Anyone else have the symptoms and problems that I've had? Without having the constant pain from eating glutens without having constant diarrhea or problems from diet. I can eat rice and pasta and all kinds of things and never have a problem my IBS just sort of comes and goes usually based on stress.

from what i am reading about celiac now is that some people don't have symptoms at all just intestinal damage....

I agree with ttucker. Some with celiac will never show symptoms. It is very likely that your IBS is actually due to the gluten. The best thing you can do is follow the GF diet and see if the IBS improves (as per your doctor). I know mine did!!

OK... well I have 2.5 mos later been dx w/celiac disease. 2 positive (although not real high, just high enough) blood tests, and endoscopy, and cultures. Dangit - I really don't want or deal with diet restrictions. I'm fighting it hard and the dietitian is astounded. I'm fairly sure it's because of the symptomatic thing.

Have any of you had massive vomiting as part of your symptoms? That landed me in the hospital for 1 solid week - just got out this afternoon.

H.

Vomiting has never been an issue for me. But living on the bathroom floor was, as was praying for death from the pain.

And remember that even if you go GF, which your health depends on, it will take a while for your insides to heal. I know you mentioned that they looked like a war zone, so even good and safe foods that have fiber could be an issue for you for a while. You may consider talking to your dietician about a low residue diet while you are healing. It has done wonders for me when I have been glutened on accident. It's foods that are low fiber so your body doesn't have to work as hard. Something to consider if you are still suffering after going GF.

"massive vomiting as part of your symptoms" Oh yeah . But add to that Diarrhea as well. oh and the ulcers under my tongue. This went on for six weeks till at last a gastrologist diagnosed Celiac Disease. ie gene and bioposy.

Jennywren