RabbitsRUs
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I can’t speak for everyone, but here are my feelings. My spouse had Fibromyalgia. We’re junior high school sweethearts, grew up together, and are coming up on twenty-five years of marriage. Even before we got married, I knew I was marrying a “medical nightmare” based on her parent’s health. But that’s OK, you marry the person, not their body (well, that’s the way it *should* be). I’ve seen her diseases progress, get better, and change. I can only guess the pains and problems she deals with each day. I do the best I can to help when she needs it, and step back when she needs me to. Sometimes it’s a fine line. I guess that’s why they call it compassion. I do wish her pain would go away, but we both know it never will. We just deal with it as a team. I see trying to make her feel better is part of supporting her. For support, we have each other and some friends. Thankfully most days she can do things by herself. Plus I have a job where I can flex my hours as needed within reason, and work from home. So I consider myself lucky. I hope by participating in this Caregivers Forum that we can all help each other, whether it’s answering a question, brainstorming some ideas, or just listening to each other. RRU |
