Hello. My dad was just diagnosed with NETs in his stomach, intestines & lymphnodes. I've learned so much in the last month & a half, I'm SURE I know more than the doctor he's seeing who's the head of oncology at Univerisity Seidmans Cancer Center in Cleveland, Ohio. It's very upsetting He just received his first Octreotride shot yesterday (30mg). None of the tumors are inoperable but they've said there are just too many (& some were described as free floating salt and pepper ize in his stomach), so they won't. In fact, the doctor said if they go to his liver or pancreas, they still wouldn't operate because there's so many. Also, he has a tumor under his clavical bone that didn't light up in the scan and they're not even going to remove that! I read that up to 30% of NET patients present with other types of cancers. My question is, in my haste, all I knew is I wanted him to get the best care and I've learned a NET patient needs a team of specialists in this specific field. Someone told me Dr. Woltering and his team, at LSU, are "the dream team". My dad signed a release form and now all of his records are in the process of going there but I never really did any specific research on the different carcinoid clinics themselves! I'm praying this clinic is as good as the others. Did I jump too fast?? Thank you SOO much!!!
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