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A community of patients, family members and friends dedicated to dealing with Carcinoid Syndrome, together.
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Welcome to the Carcinoid Syndrome Support Group



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11/21/2007 02:38
roy
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Hello,

Welcome to the Carcinoid Syndrome Support Group.

This Support Group is a comfort place for family members and friends to share and ask questions regarding Carcinoid.

Feel free to introduce yourself, ask your questions and be around people who are in your spot.

We'll be happy to hear your thoughts on how to make this Carcinoid Syndrome Support Group better.

Best,

roy

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12/24/2007 07:01
e134
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Hi Roy.

How many members of this Carcinoid group are there? I don't see anything here really.

I registered hoping to find some helpful information. I'm not too happy with the doctor I see for the illness I have and am wondering if I'm expecting too much of him or is he really as negligent as he seems. I want to know how other people's doctors have cared for them. Mine doesn't call me when he says he will. He doesn't tell me anything...If I need to know anything, I have to ask about it. He's forgetful or he just doesn't care.

He never went over my CT images with me to discuss the stages of my tumors or explain them to me. I always feel discouraged when I leave his office.

I'm really thinking I need to change doctors, but I don't think I have many choices here in Florida. I go to the Moffitt Cancer Center for care and I think that he's the only doctor there who specialises in this sort of cancer.

Are there other people here that can dessribe what their experiences havae been like with their medical care?

Post edited by: enraged2, at: 12/24/2007 09:03


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