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Hi Rebecca I've never heard of a BRCA1/2 support group but yes you are in the right place; you'll be accepted with open arms in any breast cancer support group! Kuddos to you for taking the scary test and even more scary prophylatic mastectomy! I've found in my journey of seaking support, I've also supported others! I find much comfort in sharing my experiences and helping others. msteri1 just posted about her fears of her soon to come mastectomy and reconstruction surgery: http://www.mdjunction.com/forums/breast-cancer-support-
forums/general-support/43461-how-do-i-deal-with-the-loss-of-
a-breast#43481 I think you two should chat, you could really help each other out. http://www.youngsurvival.org/bulletin-board/ There is a "Risk and Genetics" chat on the bulletin board and young survivor coalition; you could get a lot of support there. Good luck, feel free to chat, vent, ask questions whenever! Please keep us posted as to how you're doing! hugs jessi 6/9/06 - biopsy positive for cancer 6/23/06 - DIAGNOSIS: stage IV (T4d N2 M1) invasive ductile carcinoma NOS with bone and liver mets; 17 cm mass (primary tumors), inflammatory breast cancer(IBC); HER2/neu+, HR- 6/26/06-12/11/06 - Chemo FEC/Taxol w/Herceptin & Aredia 12/20/06 - right modified radical mastectomy, 7 of 13 removed nodes showed evidence of prior disease 12/21/06 - No Evidence of Disease (stage IV/NED); complete remission 2/6/07-3/22/07-Radiation 28+5 boost, 6040cGy. CURRENT: Still NED, taking Herceptin and Zometa without end. Heart and kidney function remains normal.  |
