Home

Breast Cancer Support Group Welcome to the
Breast Cancer Support Group
A community of patients, family members and friends dedicated to dealing with breast cancer, together.
    Join This Group    
    Ask a Question    
      Tell a Friend      
 
 

How do I deal with the loss of a breast



Related Discussions:

02/10/2008 15:01
msteri1
Pink Ribbon
Posts: 3
New Member

Send a PM
Give a Hug
I started this journey with 2 biopsies one came back as ILC. The initial diagnosis was a lumpectomy and some radiation. The doctor had me doing a battery of tests and the MRI showed 2 more lesions that came back positive as well, and now as of 2 days ago I have to come to terms with losing my breast. I have not yet had a consult with a plastic surgeon that will happen Tuesday but I do not know if I will ever be the same? I am a single woman I guess you could say middle aged at 45? And this is really messing with my sensuality. I do not know how maiming this surgery is even with recon and I am scared senseless. Are there any others that have felt the same? And will this only spiral down after seeing myself after surgery?
Post Reply   Quote


02/10/2008 15:46
jessicaharris9
Pink Ribbon
Posts: 254
Group Leader

Send a PM
Give a Hug
We all deal differently, and your reaction is totally normal! It's scary to loose a body part, and to loose a breast can really mess with your self image. Getting the reconstruction with the mastectomy really helps eliminate the "loss" (I'm told). I currently only have one breast (I'm 33), most of the time it's not a big deal (with the prosthetic you can't tell unless I bend over and give you a 1/2 clevage shot). It's when I'm naked looking in the mirror that you get that "painful reminder". My hubby rarely sees me without a top on anymore, and that is my issue not his.

Some women choose to do a double mastectomy with reconstruction so that they will have more symetry. That is a personal prefence and totally up to you. You need to discuss (with you, family, friends, doc, ...) things like nipple sensation, weight loss/gain effects, personal risk of recurrance, any issues you can think of, ...

I also recommend finding a trained counselor to talk to. Wheter it be a hospital social worker or support group, or clergy from the church. Holding these feelings in just makes them eat away at you.

http://www.breastcenter.com/welcome/

Above is a web-site for a plastic surgeon in Louisiana. They're suppose to be really good but more importantly it'll show you some pictures so you can get a good idea of what it'll look like post surgery and all the different options you have.

Many cancer survivors joke that despite the breast cancer, at least they get new gravity defying boobies!

As far as being a single woman, you are not alone. Lifetime movie network has a movie about a single woman and her journey through bc; it may be a good one for you to watch. I haven't seen any of their bc movies, but they are suppose to have a couple good ones.

http://www.youngsurvival.org/

Young Survivor Coalition (above) is a support group for young woman diagnosed with breast cancer. I believe they already have a chat going about dating and all the other wonderful things that bc makes that much more difficult!

It so helped me to talk to people about their experiences when I was diagnosed. Although each of our journeys is unique, we all have something to teach someone else.

Good luck and please let me know how your doing and if I can help you in any way!

FYI - since you had radiation that may limit your reconstruction options; but since your radiation is prior to the mastectomy I'm not sure how. Your doctor will go over this with you.

hugs

jessi

6/9/06 - biopsy positive for cancer
6/23/06 - DIAGNOSIS: stage IV (T4d N2 M1) invasive ductile carcinoma NOS with bone and liver mets; 17 cm mass (primary tumors), inflammatory breast cancer(IBC); HER2/neu+, HR-
6/26/06-12/11/06 - Chemo FEC/Taxol w/Herceptin & Aredia
12/20/06 - right modified radical mastectomy, 7 of 13 removed nodes showed evidence of prior disease
12/21/06 - No Evidence of Disease (stage IV/NED); complete remission
2/6/07-3/22/07-Radiation 28+5 boost, 6040cGy.
CURRENT: Still NED, taking Herceptin and Zometa without end. Heart and kidney function remains normal.
Post Reply   Quote


02/10/2008 16:31
msteri1
Pink Ribbon
Posts: 3
New Member

Send a PM
Give a Hug
Thank you Jessica for answering so quickly and for giving me some resources to look at. I read above what you have been through and it looks like a tough road to hoe ;( I am still in a non believer stage I guess it feels kinda surreal and I just want a day or more less a minute without cancer on my mind. I feel like I am going through all the stages and it does help to talk to someone that has been through it other than the people that love me but are going through the words of comfort without the understanding. More so my need to try and feel strong for them so they don't keep getting upset. I think we are all tired of crying. I will keep posting as I feel this to be a great outlet because although faceless to everyone here I am connected by mind, body and spirit, Thanks

Post Reply   Quote


02/11/2008 05:25
jessicaharris9
Pink Ribbon
Posts: 254
Group Leader

Send a PM
Give a Hug
I found myself comforting my family more than I was consoled! A bit of denial is a good think and goes a long way in your recovery! Try to keep your life as normal as possible and filled with as much laughter as possible!

I also think you should chat with Rebecca who just had a double prophylatic mastectomy with reconstruction for her positive BRCA1 genetic mutation. I'm sure she could answer a lot of your surgery questions!

http://www.mdjunction.com/forums/breast-cancer-support- forums/general-support/43604-am-i-in-the-right-group#43604

hugs

jessi

6/9/06 - biopsy positive for cancer
6/23/06 - DIAGNOSIS: stage IV (T4d N2 M1) invasive ductile carcinoma NOS with bone and liver mets; 17 cm mass (primary tumors), inflammatory breast cancer(IBC); HER2/neu+, HR-
6/26/06-12/11/06 - Chemo FEC/Taxol w/Herceptin & Aredia
12/20/06 - right modified radical mastectomy, 7 of 13 removed nodes showed evidence of prior disease
12/21/06 - No Evidence of Disease (stage IV/NED); complete remission
2/6/07-3/22/07-Radiation 28+5 boost, 6040cGy.
CURRENT: Still NED, taking Herceptin and Zometa without end. Heart and kidney function remains normal.
Post Reply   Quote


02/11/2008 08:42
RebeccasHope
Pink Ribbon
Posts: 2
New Member

Send a PM
Give a Hug
Msteri1, I think maybe I can relate. I had proph. mastectomies about 3 years ago and I too was terrified. This may sound strange but even though I was losing my breast I finally had a peace of mind. It was such a huge weight off my shoulders because I new the risk would be reduced greatly. After the surgery I felt like I could get on with my life! At times I felt like I had lost part of my identity as a woman and as myself. It took time but I finally realized that I am SO much more then that... and you will too.

Nice to meet you msteri1. Its so nice to be able to relate.

Post Reply   Quote


02/11/2008 16:31
msteri1
Pink Ribbon
Posts: 3
New Member

Send a PM
Give a Hug
Thank you Rebecca and Jessica,

I talked with the surgeon today and she talked to me about the risks of ILC showing upin both breasts but I still choose one side She told me she is very confident in the plastic surgeons abilities and she can always tell his work from others so that was a bit comforting as well. I talk to him tomorrow and find just how long the process will take between stretching me out and rebuilding a new nipple. I wish I was to the point that I felt better with this I guess that will come once the cancer is gone from my body. One thing I will research more since I am home now is the fact that she said the estrogen levels from te biopsies were good so maybe that will help down the road. I appreciate you both talking with me it helps so much God Bless you!

Post Reply   Quote


02/12/2008 04:48
jessicaharris9
Pink Ribbon
Posts: 254
Group Leader

Send a PM
Give a Hug
Good luck! I have negative estrogen and progesterne recepotrs, its nice not to worry about your naturally occuring hormones feeding the cancer; and it's one less drug to take, one less side effect to deal with!

oh, you're not suppose to feel better about this, it totally sucks! Get mad, yell, hit a punching bag, whatever! But yes you will feel much better knowing the cancer is out of your body!

Ask your doctor about lymphedema prevention (exercises, compression sleeve, ...). The biggie is no blood pressure cuff or needle punctures on the arm where lymph nodes were removed. If sitting in a hot tub keep that arm/armpit out of the water, and get a compression sleeve to wear if flying.

http://www.lymphacare.com/index.php

Don't know anything about the above company, but they have some good info about lymphdema. I had a compression sleeve,did some stretches, and manual lymph node drainage for my mild lymphedema. Once I regained full shoulder mobility my rehab doc wanted me to start strength exercises (light weights). I always wear my sleeve for exercising, but the only other time I wear it is if the lymhedema flares up and that is just during the day (you don't sleep in them)

hugs

jessi

6/9/06 - biopsy positive for cancer
6/23/06 - DIAGNOSIS: stage IV (T4d N2 M1) invasive ductile carcinoma NOS with bone and liver mets; 17 cm mass (primary tumors), inflammatory breast cancer(IBC); HER2/neu+, HR-
6/26/06-12/11/06 - Chemo FEC/Taxol w/Herceptin & Aredia
12/20/06 - right modified radical mastectomy, 7 of 13 removed nodes showed evidence of prior disease
12/21/06 - No Evidence of Disease (stage IV/NED); complete remission
2/6/07-3/22/07-Radiation 28+5 boost, 6040cGy.
CURRENT: Still NED, taking Herceptin and Zometa without end. Heart and kidney function remains normal.


Post Reply   Quote



Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read More.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Get Involved
Copyright (c) 2008 MDJunction.com All Rights Reserved