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07/05/2008 20:01
cplatt80
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My mom, Stage IV, IDC, ER-,PR-,HER2/NEU+++, extensive mets to liver (over 50%), minimal mets to lung lining, had her first tx Thurs 7-3-08. She got it done at the Cancer Center in Peoria, IL. The most beautiful treatment room ever!!! The room was very large and all of the tx recliners were facing a wall that was entirely windows that overlooked a beautiful pond with a field of wild flowers. Mom's nurse was Jean and she was absolutely the most wonderful woman in the world. She had labs at 9am, dr check up at 9:30, and started treatment at 10:30. My mothers tx is Taxol, Carboplatin, Herceptin, and Avastin (or a placebo for Avastin). My mother is also suffering from hypocalcaemia due to the cancer and since her calcium was back up to 14.3 she was given Zometa first. Then started the Herceptin, it was about lunch time by then and my mother was doing very well and said she was hungry so I decided to go get us some food. I was gone about a half an hour and when I came back she was pure white and her whole body was shaking. They got warm blankets out of the dryer and covered her from head to toe and started pushing Aloxi. She was out of it for like 5 or 10 min and when she came to she asked if she had slept at all. She slowly but surely got her color back and started feeling a lil better. She ate a little mashed potatoes and a couple bites of roast beef but was pretty nauseous the rest of the treatment. She scared the living crud out of me! I had never seen her like that. The rest of the time went as well as could be expected and I must say the atmosphere and nurses made that day as pleasant as it could have ever possibly have been. So after 6 1/2 hours of treatment we were on our way home.

The next day, on the 4th my aunt had a cookout and I packed up my hammock and pillows and blankets and made a spot for my mom. She ate a little but mostly slept...all day. I would say she was only awake for about 3 or 4 hours that day and when she was awake she was very unstable and very confused so I decided I would take her home with me. Some people down the street from my house were letting off fireworks so I brought all my down comforters outside and bundled my mom back up in the hammock in our front yard and we drank hot cocoa and watched the fire works. People were walking by with their dogs or their kids and looking at us like we were crazy people but my mom was comfortable and content and I didn't care.

So today she is feeling less fatigued but more nauseous. No vomiting but still icky. So far it has not been too bad of an experience for her so we hope it stays like this for the most part.

She told me today that she no longer thinks of it as a "bad thing" or "bad news" its just something she has to go through and it’s a change in her life and yeah it pretty much sucks but she doesn't associate the "bad" terms with it. I am very proud of her.

Anyway, I just thought I would share my moms first treatment with everyone. Maybe it will take some of you back and you can think about how far you have come since then and how hard you have fought and how worth it, it has been.

On a funny note: My daughters are 6 and 7 and we were heading over to my aunts house and I told them we had to pick up grandma first before we went to Auntie Fays house. They have so many grandma's and grandpa's that they always have to find out more information to determine which one I'm talking about. So my youngest says "Which one? Is it grandma with the Cavities?" and my oldest says "Its not Cavities...its Cancer!!" This made me laugh and say...Yes honey and I wish it were only cavities!

Hugs to all...Candice (daughter of a fighter) in IL[b]

Candice (daughter of a fighter) in IL
Mom age 50.
Orig Dx 10/07, R-Mastectomy, 17 Lymph nodes removed, thin layer of muscle on chest wall removed.
2nd Dx: 6/17/08 Stage IV, IDC, ER-, PR-, HER2+++, Extensive mets to liver (over 50%), minimal mets to lung lining, sever hypercalcemia.
Start Tx 7-3-08: Decadron, Aloxi, Ativan, Zometa, Taxol, Carboplatin, Herceptin, and Avastin or a placebo in place of the Avastin.
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07/05/2008 21:34
txbutterfly
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Hello Candice,

Wow, your mom is very courageous and a fighter and you are such a wonderful daughter to be there for here now more than ever.

As I read your story it brought tears to my eyes because of your being there for here when she needs you the most ... going to get her a bite to eat and making sure she's comfortable watching fireworks & drinking hot cocoa together (very touching).

I've been fighting the metastasis from the breast to the liver & spine for 4 years now ... chemo is starting to get old now but I'm used to it.

I recall that my first chemo treatment made for a really long day and that I was by myself ... the chemo technician was a kind older man who explained everything to me so I wouldn't be too scared of the unknown.

Now, many chemo treatments later I've come to realize how many lives I've touched because I've got the greatest friends in the whole world standing by me not wanting me to go through it alone. For me, laughter is the key and it sure helps alot to just laugh so hard that my side hurts but I forget that the meds are dripping in me and that is so important.

I'm enjoying my summer vacation with my son and watched a great fireworks show in Orange Beach, Alabama. It's hard for me to believe that just Tuesday I had a chemo treatment and then only a day later I was on a plane ride (God sure blesses me every day) with no sickness related to the chemo.

I sure hope your Mom continues to feel better with few side effects from the meds and that you have her around for many years to come.

Hugs,

~Beth~

~Life isn’t about waiting for the storm to pass. It’s about learning to dance in the rain.~ Author-Unknown

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07/06/2008 06:16
jessicaharris9
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Candice

I'm sorry your mom had such a horrible reaction; but it sounds like she is doing better. I sucked on a lot of peppermints on those nausea days, if it gets to bad call the onc nurses and they'll call in a rx for her! I also craved wonton soup; and it had to be the real thing not canned. They say eat what you can get down; and if you have an adversion to something stay away from it! The whole point is to get as much healthy food in her, but pushing food she doesn't want will just make the nausea worse! Kinda like really bad morning sickness! When I was diagnosed my girlfriend was pregnant; so she'd come over and we'd lay in bed together and chat!

I'm so glad you are taking such good care of her; make sure you take care of yourself as well! This is a long rough road ahead of her; and even if she gets off chemo she'll be on herceptin forever (like me) so you don't want to burn yourself out! They say cancer is just as hard or harder on the co-survivors! Go get a massage or something! Go out for drinks/coffee with the girls. Have a fun "spa day" at home with your daughters, take them to grandma's and do grandma's nails, give grandma a pedicure. Take grandma to the zoo (call ahead and make sure they have wheelchairs available, put a hat on her, lots of sunscreen and stick to the shade as much as possible)

Kids are great; its sometimes hard to find the appropriate explanation that they'll understand; but they always manage to bring some humor to the situation!

Go to www.curetoday.com and get yourself a free subscription! You'll learn a lot about cancer and also get support for being a care giver!

Your Mom sounds like a very strong, brave, positive person! This is what it takes to beat the beast. She's taking the exact same attitude I took when I was diagnosed.

The chemo nurses are amazing; I swear they all are saints! Go check out the pics on myspace (2008 album); I think I put a picture of the kids playing at the onc tx room while I was getting Herceptin. The nurses got such a big kick out of my kids; they let them flush my port, push the buttons on the machines, walk my blood sample to the lab (I don't let them use my veins anymore, they have to get it from my port) and my onc "Grandpa Decker" gave the kids a huge cookie!

And Beth, you too are AMAZING! I complain about Herceptin and Zometa; you are a true WARRIOR! I met a woman who was on chemo for 25 years before she went into remission! Hang in there, they will get the beast out of you!

HUGS

Jessi

XOXOX

Jessi

6/9/06 - biopsy positive for cancer
6/23/06 - DIAGNOSIS: stage IV (T4d N2 M1) invasive ductile carcinoma NOS with bone and liver mets; 17 cm mass (primary tumors), inflammatory breast cancer(IBC); HER2/neu+, HR-
6/26/06-12/11/06 - Chemo FEC/Taxol w/Herceptin & Aredia
12/20/06 - right modified radical mastectomy, 7 of 13 removed nodes showed evidence of prior disease
12/21/06 - No Evidence of Disease (stage IV/NED); complete remission
2/6/07-3/22/07-Radiation 28+5 boost, 6040cGy.
CURRENT: Still NED, taking Herceptin and Zometa without end. Heart and kidney function remains normal.


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