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Bipolars with FMS ForumsMedicine & TreatmentsNeurontin (Gabapentin) Losing Effectivness?
01/27/2010 05:52 AM
blabinsky13
blabinsky13
 
Posts: 20296
VIP Member

Wondering if any of you have taken, or are taking, Neurontin for your Fibromyalgia? Has it helped you? Did it seem to be less effective in easing your pain over time?

I had a terrible fibro. flare-up this weekend extending into this week. The Neurontin didn't seem to be working at all. This, btw, was instigated by radical changes in the weather.

I have PM'd my doctor's office about it and should hear back today or tomorrow if I can increase the dosage again. I am currently taking 1,200 mg 3 times a day for a grand total of 3,600 mg. daily.

Thanks for any input you may have.

Post edited by: blabinsky13, at: 01/27/2010 05:55 AM

Barbara

Bipolar 1 & Fibromyalgia

"We are stardust, we are golden." -- Joni Mitchell

Medications: Omeprazole 20 mg. 2x daily; Levothyroxine 50 mcg. 1 daily; Hydrochlorothiazide 12.5 mg. 2 daily; Cozaar 50 mg. 1 daily; Orphenadrine 100 mg. 2x daily; Gabapentin 1,200 mg. 3x daily; Tramadol 50 mg. 1 every 6 hours as needed; Cymbalta 30 mg. 1 daily; Abilify 30 mg. 1 daily; Ambien CR 12.5 mg. 2 at bedtime; Extra Strength Tylenol as needed.
Reply

01/27/2010 11:38 AM  Top
mem9881

I was taking Gabapentin for about a week and then I had an allergic reaction to it so I had to stop taking it. I wish I could offer some advice on it.

Maybe you could check in the Fibro group. I know that a lot of the people in the group take Gabapentin. Hope that you can get some relief or answers soon.


03/29/2010 09:04 PM  Top
santos63
santos63
 
Posts: 2524
Senior Member

Gabapentin, also called Neurontin, is an anticonvulsant, and in my 2010 Drug manual is not an approved drug for Fibro, although it is frequently used for it, as it is also used for diabetic neuropathy. I took the drug for a short period of time without results other that sedation.

So, I'm sorry but I can't answer your question, however, alot of people do develop a tolerance to different medications over time. So if you are building up a tolerance, it would not be unheard of. Best of luck and let us know your progress. I will be interested to see what the MD has to say and does.

Live in Perfect Love!
~Ana~
I worked as a RN, since 1993, I do not practice at present and my opinions are exactly that - opinions. Do not take any advice that I may offer as medical treatment. I will always defer treatments, etc to your MD, Pdoc, and/or pharmacist. What I share with you are my personal experiences, and basic knowledge that I learned as a nurse.
I have Diabetes, Bipolar Disorder with psychotic features and mixed, Fibromyalgia, Arthritis, and Chronic Low Back Pain with bulging discs in back and neck, Asthma, Hypothyroidism, Arthritis in lumbar and sacral areas, lumbar disc displacement, Degeneration of lumbar intervertebral discs, Lumbosacral radiculitis, DJD

Previous discussions I participated in:
How to tell the difference?
Hello!
Manic energy + fibro

03/30/2010 06:51 AM  Top
blabinsky13
blabinsky13
 
Posts: 20296
VIP Member

Thanks for your responses. I am still taking Neurontin at the same dosage mentioned in my previous post. My doctor added Ultram (Tramadol) 50 mg. every six hours as needed for pain. It seemed to help at first, and I still think it does to some extent, but I appear to develop a tolerance to meds. very quickly. I've been having a difficult time of it pain-wise lately with the changes in weather. And am now also in physical therapy for pain in my knees from what may be tendonitis or bursitis. It never ends ...
Barbara

Bipolar 1 & Fibromyalgia

"We are stardust, we are golden." -- Joni Mitchell

Medications: Omeprazole 20 mg. 2x daily; Levothyroxine 50 mcg. 1 daily; Hydrochlorothiazide 12.5 mg. 2 daily; Cozaar 50 mg. 1 daily; Orphenadrine 100 mg. 2x daily; Gabapentin 1,200 mg. 3x daily; Tramadol 50 mg. 1 every 6 hours as needed; Cymbalta 30 mg. 1 daily; Abilify 30 mg. 1 daily; Ambien CR 12.5 mg. 2 at bedtime; Extra Strength Tylenol as needed.

03/30/2010 08:25 AM  Top
santos63
santos63
 
Posts: 2524
Senior Member

I also tried tramadol unsuccessfully, it activated my hypomania. Kept me up all night, even when taken at early am hours. And after being activated during the day and not sleeping at night, that of course, equaled more pain in the long run.
Live in Perfect Love!
~Ana~
I worked as a RN, since 1993, I do not practice at present and my opinions are exactly that - opinions. Do not take any advice that I may offer as medical treatment. I will always defer treatments, etc to your MD, Pdoc, and/or pharmacist. What I share with you are my personal experiences, and basic knowledge that I learned as a nurse.
I have Diabetes, Bipolar Disorder with psychotic features and mixed, Fibromyalgia, Arthritis, and Chronic Low Back Pain with bulging discs in back and neck, Asthma, Hypothyroidism, Arthritis in lumbar and sacral areas, lumbar disc displacement, Degeneration of lumbar intervertebral discs, Lumbosacral radiculitis, DJD

Previous discussions I participated in:
How to tell the difference?
Hello!
Manic energy + fibro

03/30/2010 10:37 PM  Top
mimmy
mimmy
 
Posts: 1695
Senior Member

I'm taking gabapentin currently too and it's really for my bipolar, but it has helped my fibro in the past. here lately though I've been having more pain.
aroo?
bipolar w/ psychotic features
fibromyalgia
gastroparesis
mitral vavle prolaspe

lamictal 100mg
abilify 15mg
protonix 40mg 2 x's a day
neurontin 600 2 x's a day mg
orap 3mg's
zanaflex 4mg
topamax 50mg 2x's a day
ativan .25 mg up to 2x's per day.
singulair 10mg

is a leap of faith the first step?..or the moment when you realize if you go any furthur there's no going back?

03/31/2010 02:13 PM  Top
santos63
santos63
 
Posts: 2524
Senior Member

You will have more pain with physical therapy, I'm also in physical therapy right now, too. It really does heighten the pain significantly. Are you having Aquatherapy? It is a lot easier to handle. Aquatherapy is exercises in a heated pool. The heat is nice, it strengthened my muscles, but did not increase my range of motion. And these last two weeks have not been in the pool. But next week is my last week of PT. WooHoo!!!!
Live in Perfect Love!
~Ana~
I worked as a RN, since 1993, I do not practice at present and my opinions are exactly that - opinions. Do not take any advice that I may offer as medical treatment. I will always defer treatments, etc to your MD, Pdoc, and/or pharmacist. What I share with you are my personal experiences, and basic knowledge that I learned as a nurse.
I have Diabetes, Bipolar Disorder with psychotic features and mixed, Fibromyalgia, Arthritis, and Chronic Low Back Pain with bulging discs in back and neck, Asthma, Hypothyroidism, Arthritis in lumbar and sacral areas, lumbar disc displacement, Degeneration of lumbar intervertebral discs, Lumbosacral radiculitis, DJD

Previous discussions I participated in:
How to tell the difference?
Hello!
Manic energy + fibro

01/14/2012 06:51 AM  Top
BiPolar69
 
Posts: 38
Member

I took Gabapentin several years ago ... it seemed to work at first but then when it stopped working my doc kept increasing it till I was on 2,800 mg a day!

I perceived it was making the pain worse. So, I weaned myself off of the drug and went on to the next drug.

I have NOT had much success with drugs

I am NOT a doctor nor do I play one on TV.
Treat all my posts as my opinion only.

"SH*T Happens" -- Unknown
"Whatever you can do, or dream you can, begin it." -
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