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06/29/2008 00:30
monelun
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My husband is diagnosed Bi Polar (as are his sister, father and many relatives). He was originally diagnosed with depression and generalized anxiety disorder, but after a truly disastrous experience with Effexor, is now trying to manage symptoms with Paxil and Trileptal. We have three kids (adopted, siblings to each other). My husband has been off his meds for three weeks due to a medicaid clerical error, and just went back on them.

It has not been a fun day. It has not been a fun month, either.

I am sick of crying. I am sick of being accused of master-minding some evil conspiracy to chemically restrain my husband. I am sick of feeling responsible for everything that needs to be done with the kids, the house, the bills...you name it, it's my job. He's not able to give me any support. He is able to criticize everything I do, especially when he's manic. He wrote me a letter, expressing how I 'have my way', and he is 'becoming slack jawed and stupid' from the meds. When I told him I love him, he shot back 'Yeah, and Lenny loved his puppy too' (in reference to 'Of Mice and Men')

No one understands why I stay, sometimes I wonder why I do.

He misses the fire in his mind more than he loves me. How do I compete with that? Part of me feels like I am an awful person for insisting he be medicated. Part of me knows he would have gone out in a blaze of glory a long time ago without it.

I wish he understood that I love him more than I hate his illness.

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06/29/2008 10:03
norma
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Sounds like he is quite a literate fellow...I always thought Steinbeck's story was so sad. His reference to it is an illustration of what a lot of us feel when we are confronted with bipolar disorder. We are afraid of losing control to someone else, or meds, or society itself.

He has more problems than just bipolar disorder, in my opinion. Your doing everything for keeping the family together allows him to have no resonsibilities. If he can get stable and is medically compliant there is hope. Depends on his willingness to do so.

We are here for you. There are many people who go through this battle of having to try and keep a family together, while at the same time trying to help a spouse who is sick.

Glad you joined us...you are not alone, dear.. by the way i have bipolar disorder.

Post edited by: norma, at: 06/29/2008 11:13

"In the time of your life, live-so that in that wondrous time you shall not add to the misery and sorrow of the world, but, shall smile to the infinite variety and mystery of it." William Saroyan



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06/29/2008 11:31
lobo
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monelun, you are on overload and overwhelmed and who wouldn't be. That is way too much crap for one person to deal with. You mentioned about leaving. You know, this is a free country and the only reason you are there is because you choose to be. It appears that you are there because you're a dedicated, responsible and sacrificial wife and mother so your reasons for staying are quite noble and you're choosing to exercise those nobel qualities. Just realize that you are in control of that nobility and can withdraw it at any time. The problem is that it doesn't sound like hubby understands that you could pull the plug at any time. I think you're taking on way too much of his disorder, do what you need to do to take care of yourself first.
"A man is not defeated when he loses, he is defeated when he quits" Richard M. Nixon

"If what I feel were equally distributed to the whole human family, there would not be one cheerful face on earth" Abraham Lincoln


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06/30/2008 06:58
WARHORSE
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"Part of me feels like I am an awful person for insisting he be medicated." You are only trying to get him the help he so desperately needs. If he will not cooperate, that is his problem, not yours. And yes, you're absolutely right--"Part of me knows he would have gone out in a blaze of glory a long time ago without it."

Blessings on you.

"Is this a blessing? Or is it a curse?
Does it get any better? Can it get any worse?
Will it go on forever? Is it over tonight?
Does it come with the darkness? Does it bring out the light?
Is it richer than diamonds? Or just a little cheaper than spit?"--Jim Steinham
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06/30/2008 18:59
carmen33
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Monelun, welcome, if your husband isn't willing to seek out treatment and to stay on it, there isn't much to do.. you have to look after yourself and the kids.

When do you expect the error on medicade to be fixed?

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06/30/2008 23:47
Punky
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You know, not everyone has the ability to "leave" a marriage they don't want to be in. I live in america too and tried to leave a couple of times and the fucking cops came to my house, whom I called to help me, and told me I couldn't leave. Huh...freedom. All the dude could focus on was my being bipolar and told me his story of his brother being bipolar. Everyone in Florida is nuts. He couldn't understand the fact that I was alone with kids in a marriage that was bad and I needed to get out of there.

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07/03/2008 09:24
monelun
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Thank you for your kind words, Nancy.

Wiliam(my husband) went back on his meds on sunday, about two hours before my post. By monday morning, he was himself, or I should say, the William I know instead of the angry stranger. He knows I was upset by his words, but does not really understand why. Remembering a manic episode for him seems to be like looking backwards through a foggy funhouse mirror, he just can't see himself as the angry stranger clearly at all. I can see the two sides of him as distinct and separate, but he has no sensation of being two totally different men.

He is an amazing and intelligent person, and truly my best friend. Loving him is like breathing for me, and when he's stable he is the same towards me and the kids. When he's not stable, he's almost feral but always intelligent; quite a bad combination considering he's 6'6" and around 450 lbs of unreasonable bear-shaped ferocity.

It took three weeks for this last episode to erupt. Our case worker screwed up his recertification, dodged phone calls for a week, then went on a two week vacation. His medicaid was finally reactivated after weeks of leaving messages for supervisors of supervisors, and many many duplicate forms being filled out. No one there seems to have a clue how dangerous it is to have William unmedicated, which is frustrating to say the least. On the plus side, he did get approved for SSI, so much of our problem with Social Services should be solved soon.



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07/03/2008 09:27
monelun
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Thank you, Warhorse...it is such a relief to be where people understand that bi polar is real.
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07/03/2008 09:29
monelun
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Carmen33: The error has been fixed, it was a rough transition back to being medicated for us. Now that he's been back on for a few days, he's all about compliance and treatment....it was just getting him there that was the rough part!
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07/03/2008 09:32
monelun
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Punky, I hope things are better for you soon.
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