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"Bipolar" (Britt1000)

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liamacker"The part of my recovery plan that I would say made up 80% is MDJ. I suffered a lot prior to finding MDJ, felt alone and had no one to talk to who really understood me. In the Bipolar Group I found like minded individuals who I could relate to and who offered support to me when I needed it. As I recovered, I could then offer support to them which gave me a good feeling about myself. I have met some great people here who I would class as good friends and know I would still be in the slump I was in without them. Now I am stable, I know that MDJ plays an important part in keeping me that way. Thank you MDJ for being there for us all and making us no longer feel alone." (liamacker)

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11/28/2011 10:26 AM
JustJulie62
JustJulie62Posts: 925
Member

Just curious if anyone here participates in real life support groups - and if so, are they headed up by a professional or is peer structured?

Wonder how we would all do together in real life - would we be as supportive? Would we cry openly? Would we need rules?

There is none that I can find in my own city, but I am considering forming one. I feel isolated and can't help but feel that being around kindred spirits might at least get my ass out of the house...I need to start moving in my life instead of standing still.

"We are all in the gutter, but some of us are looking at the stars" - Oscar Wilde
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11/28/2011 11:09 AM  Top
Cthebird
Cthebird
 
Posts: 2609
Senior Member

Hi Julie,

I attended my town's DBSA (Depression & Bipolar Support Alliance) support group for a few years. I'd still be going, but it starts at 7:30 pm and I'm usually tired at that time. It is a peer run support group. It's not that unlike here. After general announcements people introduce themselves, give mood rating, sleep info, main stressor info and then a suggested topic (if they have one). The rest of the meeting focuses on discussing the topics. You can certainly start your own DBSA support group. I knew of someone who did.

DBSA also has an online support group which meets at given times and is like a multi person chat.

There are also NAMI support groups, but as far as I know they are mostly geared towards family members. I think they have at least 1 meeting for "consumers" as they call them. That would include people with various mental illnesses including schizophrenia.

Bipolar 1, Simple Partial Seizures, and migraines

Psychiatric meds:

Lithium ER (900 mg)*Tegretol XR (1400 mg)*Lamictal (100 mg)*Geodon (160 mg)*Navane (5 mg)*Seroquel XR (100 mg)*Klonopin (.5 mg)

Ativan 1 mg "as needed" (I rarely take it.)*Seroquel regular 50 mg "as needed" (Only if I'm getting elevated.)

Other meds:

Propranolol (40 mg)*Levothyroxine (150 mcg)

My mix is side effect friendly for me.

11/28/2011 11:23 AM  Top
Eric17
Eric17
 
Posts: 358
Member

Hi Julie:

I belong to NAMI (National Alliance for Mental Illness), one of the largest mental health advocate organizations in the country. I joined after attending a few meetings with the local support group. NAMI's primary goals is, in addition to lobbying for mental health 'consumers' (those of us with an illness), to educate and support the mentally ill (HATE that term/label) and the people who support them.

Unfortunately, the support group in my area is primarily there to assist and educate people with a loved one/friend/etc. who has an illness. I am the only one who has attended since last March who actually has an illness. At first I was thrilled because I felt one step closer to others who shared my experiences but that soon faded. Hearing and seeing the heartache of parents with loved ones who have bp and schizophrenia broke my heart. I tried to offer advice and info based on my firsthand experience and have received very positive feedback but... Three months ago (monthly meetings) I broke down during a meeting while a new couple were begging for help. Their adult son, who lives a state away, was rapidly deteriorating and refusing treatment. It triggered a mild cycle so I didn't go for two months. I did go last month and after hearing one of the members continuously refer to those of us with bp as 'they' I decided that I was done. I know it wasn't meant to be hurtful but it did. No, I didn't say anything to him, I just wasn't in a place where I would have been able to maintain my composure. We all have our limits right?

I mentioned it to my pdoc while discussing my need for more social interaction and he mentioned that the clinic was in the planning stages of starting a peer to peer support group. I am hoping it comes to fruition. I'm not sure that meeting face to face with others that are afflicted with bp will fill one of the 'holes' I feel inside but I'm hoping and desperate to find out.

Hope this helps you. Take care.

Eric

Eric
Bipolar Affective Disorder, Social Anxiety Disorder, OCD
Currently (03/17/2011): Lithium, Temazepam, Cognitive Behavioral Therapy, Multi-vitamin, Fish Oil
Good Sleep Hygiene/Near Vegan/Exercise/Working to Limit Stress
This illness will not take from me again without a fight!
* "Doubt everything; find your own light" Siddartha Guatama Buddha

11/28/2011 04:30 PM  Top
2ofme
2ofme
 
Posts: 1352
Senior Member

JustJulie62; I simply want to start a commune style neighborhood/house where we can all be together to support one another when support is needed and celebrate together when celebration is called for. Nothing soothes the wounded heart better than true compassion, true empathy and true unconditional love. Too damn bad it's not in my budget Sad
-------------------------
BAD-2 w/ ME, RC & Hyper-Sexual Tendencies,
MDD, GAD & SAD, PTSD, Paranoia
ADHD/ADD w/ OCD Tendencies,
Adult Child of Abuse,
Substance Abuse Survivor with
Alcoholic Tendencies
-------------------------------
in the "healing process"
-------------------------------
trying to learn to "live again!"
-------------------------------
redefining "good enough"
-------------------------------
personal goal: "LIVE HAPPILY & HAPPILY LIVE!"
-------------------------------

11/29/2011 11:14 AM  Top
JustJulie62
JustJulie62Posts: 925
Member

2ofMe: I've had the very same thought...of opening a healing house (I hate the term Halfway House or any house name that resembles recovery models "serenity lane") - there would be no corny signs indicating it was anything other than a kick ass ranch style home, or Victorian, or whatever.

We would probably need a professional to oversea the program - and have some house rules. I vote for Dr. Drew!

"We are all in the gutter, but some of us are looking at the stars" - Oscar Wilde
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